You are here

Steven on LBC radio- well done ;o)

 

just in case Steven's post is missed in the very long thread of the NICE ADC discussion I have reposted his message here.

well don Steven,

Sandy

-------------------------------------------------------------------------------------------------------------------------------------

Last night I was interviewed by my local paper and photographed holding a box of Imatinib and Nilotonib,

About 20 minutes ago I phoned LBC radio staition which is currently talking about money for cancer drugs and I put the point accros as well as I could. James Whale has liver Cancer some years ago so was interested in what I had to say.

I did say at the end that it felt like the Nice panel where like the terrorists of the NHS. He laughed but knew where I was coming from as he had the same battle some years ago and set up the James Whale cancer fund.

Yes I was on again this morning talking about our cause.

Will keep going on this

thanks Steven.. for your committment

Sandy

Thank you for contacting me regarding the National Institute of Clinical Excellence (NICE) and the approval of drugs for the use on the NHS. I fully understand the concerns you have raised.

The Government will introduced a new system of value-based pricing which will make effective treatments affordable to patients on the NHS. These plans will ensure licensed and effective drugs are available to NHS clinicians and patients. The government will focus NICE’s role on what matters most – advising clinicians on effective treatments and quality standards – rather than making decisions on whether patients should access drugs that their doctors want to prescribe.

As a result of these changes , NICE will not be able to issue formal restrictions on the use of treatments on the NHS. Instead, these decisions will be taken locally. Taken together, I believe these policies will help restore confidence in our drugs licensing system, and help patients gain access to the medication they need.

As requested, I have written to Nice and the Department of Health, asking them to look into the matters you raise. I will be in touch as soon as I have anything further to report.

Thanking you again for taking the time to contact me.

Yours sincerely

James Clappison

 

I am meeting with him on Thursday.

Thanks for sharing the contents of your MP's letter.....

as to his point about value based pricing- this will not be available as a mechanism to assess any new 'innovative' technology (drugs or other) until 2014- so high dose imatinib- nilotinib - dasatinib will not be eligable for this system. What do resistant patients do meanwhile if this NICE ACD is turned into a FAD( final appraisal determinations) ?

Maybe you could point  this out to him when you see him on Thursday.

Best wishes,

Sandy