There are two 'live' petitions
1. NICE? I don't think so!
against the appraisal for imatinib resistant CML
and
2. NICE be Nice to Cancer Patients
against last years peliminary appraisal for imatinib intolerant CML
I know this has confused some people- but we need to keep the 'older' petition live too because NICE have separated the two cohorts of patients who need access to 2nd generation drugs in to two separate appraisals. They did this to confuse and it has.
However NICE will discuss the two ACD's (for resistance and intolerance) separately, but at the same meeting on June 9th
so we will have to deliver both petitions to them- and also to the Secretary of State for health- as if they are for a separate appraisals-
I have registered to attend both NICE appraisal meeting on June 9th in Manchester-
We have a chance to silently protest in the same room as the committee- just by being there.
I am at the New Horizons CML and GIST conference in Amsterdam and we have a lot of support for from CML advocates all over the world. They are all really shocked that NICE can make such a terrible decision for CML patients in the UK-
I have many assurances of support and willingness to help the campaign and hope to get a lot more signatures.
We have lots of our doctors signing too.... please encourage your doctors to join their colleagues sign up too.
If you want to register to attend the NICE appraisal committee meeting see information below:
Best
Sandy
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The public registration facility to attend the Committee meeting for the, dasatinib and nilotinib for imatinib-intolerant chronic myeloid leukaemia on Thursday 9 June 2011 is now live on NICE website.
If you would like to register for this Committee meeting, please do so via the following web page,
http://www.nice.org.uk/newsroom/publicmeetings/TAC9June2011.jsp
(scroll down the page to register for BOTH final appraisals)
Please note, people who come to watch a Committee meeting are there only as observers. As a public observer, you will be able to listen to the business of the meeting, except where confidential information is being discussed.
However, public observers will not:
· be able to participate in the committee's discussions
· be able to ask questions
· take part in voting
· or put your views to the members of the committee.
For further information about meetings in public please refer to the following web page,http://www.nice.org.uk/media/023/54/PublicMeetingsInformation.pdf.
