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Glivec Mouth?

I have been on Imatinib for 2 years now post transplant and over the last few months have experienced quite sore gums. Several trips to the dentist and a whole face x-ray later has established there is nothing wrong.

Is this another manifestation of the lovely side affects we all so love?

I have not heard of this side effect.. you might look at supplementing with B Vits as it might be that you need a little more B's etc in your diet.  I think one of the signs of B deficiency is sore mouth/gums etc. A good B complex vitamin migth help. No harm in trying.

Sandy

Hi I also have the same problem, started with outh ulcers and then swollen purple gums m heamatologist thinks its from the gleevec, as it only started after taking them. Im not in pain with my gums though but the ulcers cause a prob.

Sandy i was told to avoid all vitamins etc am i able to take vitamins and is there any that i should avoid

Thanks Naomii

Hi Naomii,

I have never been told to avoid vitamins/minerals. These are food supplements- i.e what we should get from the foods we eat.... however, the way foods are produced, farming /growing/ conditions of soil etc. means that vitamin/mineral content is generally a lot lower these days. Also we tend to eat more and more processed foods and this can also be a problem with ensuring we get enough vitamins. So in my opinion (and others might diasgree) vitamin supplements are a good way of making sure we are not disadvantaged health wise. Personally, I take lots of Vit C (ascorbic acid powder form) Vit B complex 100mg, vit E 200 iu, D3, beta carotin and a good general mineral supplement. Plus I use magnesium oil on my skin.... oh, and natural progesterone cream ;o)

But it is of course a personal decision to do this and I did this throughout my treatment with imatinib and then throughout my SCT + im treatment. 

I suggest you tell your doctor about you sore mouth- do a little research on signs of B vitamin deficiencies. You could also eat lots of wholemeal bread, liver and other foods rich in B vits.

hope this helps,

Sandy