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AMAZING NEWS!!

Hi

Some of you may remember I posted a couple of months ago about how my CML was now terminal as i had failed TKI'S, gone into blast crisis

(and had signs of AML) and had 2 rounds of chemo neither of which worked so, as I had too many blasts in my marrow to do a transplant that was canceled.

 

I was put on Dasatinib but warned 'it was unlikely to work on me now'

Over the last few months, despite expectations, my WBC stayed down so last weeks they decided to do a BMB WITH AMAZING RESULTS!!

 

The blasts had decreased dramatically and I am now back in what's called 2nd chronic phase.

I don't think Prof Craddock and the team here could quite believe it and he was quite cautious giving me the results at first as he wanted them re checked!!

They are planning to do a transplant now as quick as possible and as I already had an unrelated donor they just need to contact him again. They want it done before Christmas preferably, gulp!!

 

Its all been such a whirlwind as a few weeks ago I was planning and preparing my family for my death.

I feel like I've been given a second chance at life and I intend to grasp it with both hands.

What a rollercoaster my CML has been, I'll be glad when the transplant is over and I can finally be 'cured'

Take care everyone

Best wishes

Jackie

So pleasd to hear things have turned round for you so much, great news. Heres to the transplant and the cure. I assume will be at the QE, who will be doing it do you know ?

I assume you are round the Birmingham area i am in Sutton Coldfield, not seen Prof Craddock but here great things of him.

Keep us posted.

Nigel

Amazing news indeed! Well done for continuing to fight Jackie and good luck for the hard road ahead. My thoughts will continue to be for your family and you to get through the coming months with love and dignity- I am just so pleased that the long term result now appears so hopeful... ADJL xxx

Hi Jackie

This is wonderful news. So many of us felt so much for you and your family when the news looked so grim. I'm sure we'll all be rooting for you as you have your BMT.  Great news indeed!

Love

Chrissiexx

That's amazing news Jackie and good luck to you. My husband is 6 months post transplant. It's a hard road but a very worthwhile one. I'll be keeping an eye out for your progress,

Regards,

Moira

Great news Jackie - am So pleased for you!! XXX

Hi Jackie......... all I can say is WOW! I can't express how pleased I am- and I am sure everyone who reads this forum must be- to hear that you have this 2nd chance. I have read some papers on dasatinib being very effective in 'some' blast stage patients, and that it remains effective over the long term in  too. 

But I understand that Prof. Craddock would not want to look a gift horse in the mouth and go on with the plans to transplant you.

Do talk with him about the possibilities of non-myeolblative sct- he was the doctor who designed the protocol behin the sct that I had back in 2003...i.e a reduced intensity sct + 11 months TKI then donor lymphocyte infusions (the cureative bit).

Stories on this forum never cease to amaze and inspire... and yours is one of the most inspiring and will bring hope to many who might think that all is lost.

Congratulations,

Sandy

 

Dear Jackie

 

What fantastic news - Dasatinib is turning out to be a fantastic drug.  On reading your previous post and feeling such emotion for you I am now elated

 

Wishing you all positive thoughts for your transplant

jacqui

 

Dear Jackie

I actually think this is the best news i have had all year and i am actually sitting here with tears in my eyes. I am so happy for you and your family, I was deeply saddened when you gave us your news a couple of months ago and it really opened my eyes to the whole CML saga and things that can happen, you are a true inspiration especially to those who are newly diagnosed as you have proven that the fight is never over no matter what is thrown at you and this gives me so much hope for the future

Thank you for sharing your news 

Thinking of you

Naomii x

Hi Jackie,

Many of us were really sad to hear your news a couple of months ago and I was thinking a few days ago how you were getting on.

Signing on to the web site today and reading your note has made my day. I'm taking DASATINIB on the Sprit2 trial and it really is a brilliant lifesaving drug.

Please keep us posted on your progress........we are all thinking of you and your family.

Best Wishes

Dave M 

I even cheered and did a small dance around the room (cats are terrified now!) :-)

Dear Jackie

I am so so pleased for you - what fantastic news!!!! And yes, what a rollercoaster you have been on......

The very best of luck with your transplant, and don't forget to let us all know how you are getting on. Your CML family are all rooting for you!

Big hug

Janet x

Fantastic news Jackie. So pleased to hear this.  Another success story for dasatinib. Very very best of luck with the transplant.  Richard.

Fab news. Hope it all goes well.xx

Jackie, this is my first ever post on this site, although i have been lurking for many years!!! I had to register just so i could tell you how thrilled i am to hear this. I read your post a couple of months back and was devestated for you. I looked back on your previous posts and read you had young children....my heart just broke for you and your family. I have just logged on and was searching old posts to see if you had any updates....and here you are!!!! WOW, cant believe the turn around, fantastic news. Good luck with your treatment, i am sending you a cyber hug (())

Mandy xxx