submitted by Gareth84 on Mon, 28/11/2011 - 18:53.
Hello everybody. I've just been reading thru these posts and thought I would tell my story and see if anybody has any advice for me. In April this year I was diagnosed with CML. I was sent home from the hospital with just a booklet and nothing else. I have been to the hospital many times for blood tests and I'm currently taking imatinib. The treatment is not working properly and I have just had a bone marrow test done to see what happens next. I recently went to my GP and asked to be referred to a Macmillan nurse because mentally and physically the CML was affecting me. He asked what my specialist nurse had said. I told him I had not seen a specialist nurse and he was angry about this and rang the hospital straight away to find out why. The specialist nurse just said I had slipped thru the net. Apparently tho I was supposed to have met her 7 months ago when I was first diagnosed. I have only met her once last week for the 1st time. I explained to her my aching body, my shins, lower back and arms especially and she basically said that it was psychological and that I should not be having these pains. this made me angry and upset because she is supposed to help me but she seemed against me.