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2nd phase of CML Survey

Update on 2nd part of CML Survey.

A healthcare market research agency is conducting a survey on the treatment of Chronic Myeloid Leukemia (CML) with patients based in the UK and are looking for patients aged 18 and over from all ages, all racial and educational backgrounds currently in the chronic phase of the disease and taking Glivec, Tasigna or Sprycel, to give their opinion on their treatment.

 

The actual survey itself has been delayed and will now take place from 6 to 19 February.

All those who volunteered for the study and who sent their email contact details to the agency conducting the survey have been informed of the delay. 

However, there is still a need for approximately 10 more participants

Eligibility criterea:

  • based in the UK. 
  • aged 18 or over. 
  • from any racial, educational background  
  • currently in chronic phase CML
  • treated with either Gleevec, Tasigna or Sprycel.

Please note that if you do not take any of the above named drugs or do not live in the UK, you will not qualify for the study.

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  • You will be asked to complete a 20-minute online questionnaire about your current CML treatment and alternative treatments.
  • You will receive a generous incentive for completing the questionnaire, which will be paid by bank transfer, Paypal or Amazon voucher (you choose how you want to be paid).
  • Your incentive will be paid within 10 days of you completing and returning a participation form with your payment preference and details to us.
  • The survey will take place from the second week of January BUT will close AS SOON AS we have reached the required number of questionnaires
  • Please complete the questionnaire as soon as possible, ideally within 2 days of receiving the link from us to make sure your questionnaire is validated and included in the final questionnaires

To take part and for more information on the survey please fill in the selection questionnaire by clicking on the following link:

https://docs.google.com/spreadsheet/viewform?formkey=dG9jNGloQTc1VUtBVkxkWERsQWIyTUE6MQ

You will be informed within 3 working days whether you are eligible.

If you are we will email you the link to the questionnaire.

NOTE: The survey has been delayed and will now start in mid February 2012

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Hi all, i have just received this email as i completed the form yesterday, self explanitory.

Nigel

 

Thank you volunteering to take part in the second phase of our survey on Chronic Myeloid Leukemia (CML).

Sorry we could not reply to you sooner. There was a flaw in the form and no field was available for email addresses. Silly mistake, really.

We would be grateful if you could post a message on your forum asking the people who filled in the form between 22 and 28 December to email their name to mysurveys@macksense.co.uk. We already have the form details and only need to be able to contact them.

Happy New Year!

 

Can the following people who have applied to take part in the survey please contact Emma on emma.seka@macksense.co.uK. Emma has informed me that she has not got the contact details of the names listed below. If you have already been in contact regarding this then ignore this post.

If you need further help then contact me on cmlsupportgroup@gmail.com rather than add to this thread.

Best wishes,

Sandy 

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stephen jones

Nigel Deekes

Karen Adams

Lynne robertson

Barry Allsop

John Furnell

Steven Davies

Rajpreet K. Singh

Susan Parsons

Richard Wright

sharon taylor