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Recently diagnosed and started on imaginable

Hi all, I was diagnosed a week ago at Worcetser Royal Hospital. I had been unwell for some time and the diagnosis was picked up by chance by a blood test. Obviously as with everybody who is diagnosed, this came as a massive shock and I feel numb about the whole thing and I am struggling to come to terms with it. I am 36 and probably most people will agree, they never expect something like this would happen to them.

I was started on imatinib last Friday, and two days ago I started getting pains in my left leg, and also my jaw. The pains in my leg are my main concern. I know the meds can cause cramps, but the pain is more of a dull ache, and feels like it is coming from the bone rather than the muscle. I had the same pain about two weeks ago when I was waiting for my results, but at the time I was taking Hydroxycarbamide. I had one of the consultants check my leg over but they couldnt see any issues.

I was wondering if anybody else suffered with leg pain but it wasn't specifically cramps in the muscle. I have an appointment with my consultant tomorrow, but I feel people who have experienced the symptoms understand more about how you are feeling.

Mark

Sorry to all my computer changed the title, please ignore as I have resubmitted.

Sorry

Mark

Hi Mark, and welcome to this exclusive club. I was diagnosed in September last year at 45. Like you had leg cramps after a few days which lasted a 5-6 days and in the last 2 were really quite painful ( not to bad though ) they then went and have not I am pleased to say returned. This is a very common side effect early on I gather. I tried Magnesium oil as was told it helped, don’t know if it did, also tried Tonic water, has quinine in, well worth a go, went as I say soon.

 

Mine was like yours more bone than muscle, guess it’s a good sign the drugs are doing something, so in many ways be pleased if that makes any sense as I felt it shown the drugs were doing something.

 

This site is great very helpful, after a few days / weeks you start to calm down, youtube is worth a look I found lots of info and doctors talking about the future and prognosis, and explaining well where you are and going, the future is very good for most. If you need feel free to contact me    ndeekes@onetel.com.

 

All the best   Nigel