Hi I am new to all this! and hopefully I am pressing all the right buttons!. I was diagnosed 2 months ago and I am on Dasatanib, I am off work at the moment and just wondered if the fatigue I am having will get better soon? , I feel really lazy but don't have much energy at all. I also wondered if I will be able to reduce my working hours because of cml/. I Have a really stressful but I do enjoy it I just can't imagine working full time has anyone else reduced their working hours?
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recently diagnosed
hi i was diagnosed a year ago iv been on dasatinib since dec . just gone back to work three weeks ago just doing 3 days a week at present, i am very fatigued in the afternoon and been like this since changing to dasatanib.My work are pretty good ,they just let me work to how i feel ,however how long that will last i not sure .also my doctor wrote a back to work note for 3 days a week until i feel ready to do more ,so you could try this . paul
Hi and welcome,
I think that you really need to give yourself time to get used to the medication as well as having this disease. It will take some time to come to terms with and manage. However, there is life after diagnosis and most people do find a routine that allows them to continue as before. I do hope that your employers are understanding and give you a little space to find how you can cope with this particular side effect of TKI therapy-
I am sure that when your counts normalise and you reach the various treatment goals, over the next few months you will find that you can manage your day to 'fit' in with the side effect of tiredness.
If you do not do so already, drinking enough water to keep yourself hydrated really does make a difference to physical tiredness. It is pretty essential to do this for general health anyway.
Reducing your working hours will help you over the first 6 months or so... I hope you can arrange this.
Best wishes,
Sandy
I Was also was diagnosed a year ago, have just had second bone marrow extraction, and have been on Dasatinib since diagnosis. Have been constantly tired as days wear on, but these are getting less and less. Also have a stressful job,but since day 1 have had very supportive employers. I assume the illness and treatment all affects us differently. The only thing that has really been affected with myself is my actual desire to do things, whereas before I would have got on with things without question.
From first diagnosis the water drinking was advised to eliminate any gout issues.
Just hope things get better for you.
Hi guys
Been on Imatinib for 2 1/2 years now and I'm due to get laser treatment on my eyes next week to sort out rogue veins and bleeding. Does anyone have experience of this and if so, how did it go?
While i'm on, Sandy- Keep up the good work on the forum
Gary
I sympathise with all of you experiencing the side effect of fatigue from TKI therapy. I would say that if your HGB counts is below normal ranges- see FAQ page for normal values- that this alone would account for lack of energy and willpower.
TKI's do suppress the red blood count in many cases- make sure your diet is rich in all the B vitamins and Vit E- if not then use a good B complex supplement including Folic Acid, and a natural Vit E at at lest 200 iu per day.
Also Vit D3 seems to be pretty essential for general health and well being according to ongoing research- having just got back from holiday I can vouch for how good being in the sunshine makes you feel.
I think also the shock of diagnosis has a long term effect on energy reserves. This does get better with time.
Sandy
Hi thankyou for your reply it's reassuring that there are others on this forum that can share how they are feeling too,have stopped the Dasatanib as i have a chest infection but hopefully i will be back on it next week. I also feel the same as you i lack the desire to get on with things too but have put that down to lack of energy and tiredness , I think i should be exercising but can only think about it at the moment!