For those who are interested in taking part in Surveys there are now 3 on the Survey Page link (on left hand lower main menu)
Survey 1: asks for your feedback on the agenda for the patient and carer day during the 2013 EBMT meeting in London.
Survey 2: “Quality of Life Study II"- CML Society of Canada and partners.
The Journey of CML & Disease Management Through the Eyes of Patients”
Authors: Cheryl-Anne Simoneau, BA; Suzan McNamara, PhD;
Sandra Shaw, MSc (Bio medical ethics – pending)
Survey 3: " Adherence to TKI therapy for CML"
This is an important study to assess reasons for non-adherence to TKI therapy over the longer term. It is totally anonymised so you can be honest if you are intentionally (or non- intentionally) non-adherent to therapy. The survey is looking to recruit at least 2000 individual CML patients worldwide.
Sandy