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scuba on 27 February 2018

Category: Food & fitness

Replies: 37

Last updated: 19 May 2020

Fasting and Cancer part 2
by scuba (May 19)

24 hour fasts are not sufficient. You must be in ketosis in order for stem cell based autophagy to kick in. According to Dr. Longo, it takes 3 days of fasting for stem cell based immune system

by deonlee (May 19)

In your opinion, is there an "optimal" fast that one would try to achieve? I'm quite comfortable with 24hr fasts but I'm wondering is this enough to induce effective autophagy and

by onekayaker (May 19)

No need to answer. I saw after I posted your responses to others. Ty

by onekayaker (May 19)

No need to answer. I saw after I posted your responses to others. Ty
Category: Food & fitness

Replies: 37

Last updated: 19 May 2020
EvaH on 6 December 2019

Category: Food & fitness

Replies: 5

Last updated: 29 December 2019

Importance of Magnesium video by a Cardio guy
by Nimbus2 (Dec 29)

I purchased magnesium taurate. The package indicates "MAGNESIUM TAURATE" but in small letters shows "Magtein Magnesium L-Threonate, Magnesium Glycinate, Magnesium Taurate". All

by Nimbus2 (Dec 8)

Thank you, Scuba. I cannot afford a laxative effect with the problems that I already have with imatinib generics. I will junk the former when they arrive and I have reordered.

by EvaH (Dec 8)

I need my brain more ;)

by scuba (Dec 8)

A guide to the different Magnesium complex':
http://peoplesrx.com/the-best-kind-of-magnesium-for-you/
Magnesium Oxide is the least expensive and the least absorbed. It is what is used in
Category: Food & fitness

Replies: 5

Last updated: 29 December 2019
RB on 12 December 2019

Category: Food & fitness

Replies: 4

Last updated: 12 December 2019

Xmas Food!
by RB (Dec 12)

Haha! Thank you! Merry Xmas and happy new year to you too!

by Felix (Dec 12)

Hi, only 6 mince pies ,you on a diet ,haha ,go for it and enjoy every last crumb.Merry Christmas and Happy New Year .

by RB (Dec 12)

Hi David,
Thanks very much for your message. Very helpful information. I think, when first diagnosed, I felt that so much of my life and course of my illness was out of my control that it felt

by David Fitz (Dec 12)

Hi RB,
People overthink this one all the time. Stick clear of grapefruits and grapefruit juice.
You'd have to eat an emornous amount of pomegrante to cause a problem. Stick clear of 100%
Category: Food & fitness

Replies: 4

Last updated: 12 December 2019
johnw1001 on 29 October 2019

Category: Food & fitness

Replies: 1

Last updated: 6 June 2022

Lifestyle after cancer
by israel (Oct 31)

This book seems to be an entertaining read. Admittedly, I have a hard time reading books longer than 100 pages (I might not sound smart by saying that) but chapters 15 and 16 have topics that are of

by johnw1001 (Oct 29)

Hi All,
I have come across a publication by Professor Robert Thomas titled "Lifestyle After Cancer". The author is a practicing oncologist in the UK and has done innovative research into
Category: Food & fitness

Replies: 1

Last updated: 6 June 2022
koralia.pappi on 27 September 2019

Category: Food & fitness

Replies: 1

Last updated: 27 September 2019

Workout and tasigna
by Snowman35 (Sep 27)

Hi koralia!

No problem at all!. I often go for training 0.5-1 hour after I take my pill!

by koralia.pappi (Sep 27)

Hi all,
Diagnosed 4 months ago, on Tasigna 2x300, my latest PCR is 0.32% (yeahhhhh ) and I'm trying to get my routine back to normal.
I'm not the fittest of people, but I want to add some
Category: Food & fitness

Replies: 1

Last updated: 27 September 2019
johnw1001 on 3 June 2019

Category: Food & fitness

Replies: 1

Last updated: 3 June 2019

Lifestyle after cancer
by David Fitz (Jun 3)

Hi John,
Though I posted the conference report, it was actually Nigel Deekes who went this year. With my twins now home and keeping us pretty busy I wasn't able to go this year. Usually both

by johnw1001 (Jun 3)

hi All,
In his report on the recent CML Advocates conference David highlighted the second edition of the book by Professor Robert Thomas titled "Lifestyle after Cancer" .This is a topic
Category: Food & fitness

Replies: 1

Last updated: 3 June 2019
r06ue1 on 20 May 2019

Category: Food & fitness

Replies: 0

Last updated: 20 May 2019

Can Turmeric Supplements Damage Your Liver?
by r06ue1 (May 20)

I know more than a few of us likely take this supplement, just be aware of the side effects.

https://www.healthiguide.com/nutrition/can-turmeric-supplements-damage-y...
Category: Food & fitness

Replies: 0

Last updated: 20 May 2019
Evoabbi1989 on 8 April 2019

Category: Food & fitness

Replies: 2

Last updated: 8 April 2019

Supplements
by cmljax (Apr 8)

Exercise, exercise, exercise. Whole foods diet with plenty of veggies for natural vitamins. Sunshine for Vitamin D

by scuba (Apr 8)

Do a search using the search box above (next to Account) for "supplements", "fatigue". You will see many posts on the subject. It has been covered extensively. If you have a

by Evoabbi1989 (Apr 8)

Hi All
I'm currently on 400mg of Imatinib (Gleevec) almost 5 months in. Wondering if anyone can advise on supplements for dry skin, fatigue and something to boost immune system?
Also what
Category: Food & fitness

Replies: 2

Last updated: 8 April 2019
scuba on 10 March 2018

Category: Food & fitness

Replies: 3

Last updated: 21 March 2019

Shitake mushrooms
by scuba (Mar 21)

Just had a bunch (shitake mushrooms) tonight! I have them in fits and spurts.
Sauteed gently in a bit of butter and then tossed in with broccoli. Seasoned with a bit of olive oil and apple cider

by EvaH (Mar 20)

Hilarious....I had a reaction to undercooked shitake mushrooms, rare but it does happen. Thought I was developing shingles!!
I´m pretty sure I´ve eaten shitakes before, *maybe* it had

by Romo (Mar 10)

Wouldn’t it be funny if it only worked if you had to
...eat the mice to get the affect.
The mice becomes the vaccine.
Would you eat the mice with Shitake mushroom and a cream cheese sauce?
I

by scuba (Mar 10)

If you like Shitake mushrooms - eat up!
https://www.cancertherapyadvisor.com/fact-sheets/cancer-ahcc-fact-sheet/...
Category: Food & fitness

Replies: 3

Last updated: 21 March 2019
Ontasigna on 20 March 2019

Category: Food & fitness

Replies: 1

Last updated: 20 March 2019

Tasigna and Cough
by sorin real (Mar 20)

I'm on Tasigna, too.Generally , I eat a lot of curcumin and bee products and I do not really have cold problems.

However, when it happens, I take for cough raw honey. Buckwheat honey is the

by Ontasigna (Mar 20)

Hi there,
I am finding it difficult to avoid people with cough. However, due to pollution, pollens and changing weather cold and cough are inevitable.
How do you all combat cough. What cough
Category: Food & fitness

Replies: 1

Last updated: 20 March 2019
cmljax on 9 January 2019

Category: Food & fitness

Replies: 7

Last updated: 13 January 2019

Vitamin D and kidney stones???
by Nimbus2 (Jan 13)

Thank you, Scuba, for finding the reference.
Every two years a retired consultant visits our village and provides PSA testing to all the gentlemen of the village. He also provides presentations and

by scuba (Jan 11)

Nimbus2 - I found a reference citing experimental results yielding the greater than 60% reduction in risk of prostate cancer:
https://www.ncbi.nlm.nih.gov/pubmed/18400723
Perhaps the NHS should look

by scuba (Jan 10)

Absolutely - would love to see their references. I came across this one:
https://www.nutraingredients.com/Article/2008/04/09/Vitamin-K2-linked-to...
and suspect the "60%" figure cited in

by scuba (Jan 10)

Reference range:
(from: https://www.ncbi.nlm.nih.gov/books/NBK250/)
"Calcium is maintained within a fairly narrow range from 8.5 to 10.5 mg/dl (4.3 to 5.3 mEq/L or 2.2 to 2.7 mmol/L). Normal
Category: Food & fitness

Replies: 7

Last updated: 13 January 2019
Nimbus2 on 22 July 2018

Category: Food & fitness

Replies: 11

Last updated: 28 August 2018

CML >>> physical fitness
by Nimbus2 (Aug 28)

That is very interesting, Rick, because your observations are consistent with my own. You sound like a great swimmer. For my part, I was just about able to achieve 2,500 metres in an hour a year ago

by Rick B (Aug 28)

I swam in college and competed on the national level; thus, swimming has always been my prime exercise. In the months before being diagnosed with CML, I began to find it harder and

by Nimbus2 (Aug 28)

Hello, and thank you for your response.
I take Imatinib 40 in a couple of hour's time, so you are ahead of me.
I swim with a sophisticated watch which records all sorts of clever things such as time

by trusamandfive (Aug 28)

We must be pretty close in our start dates for TKI's, today is day 41 for me.
One of my symptoms was a decline in exercise ability which I blamed on age, to be honest when I found out I had CML I
Category: Food & fitness

Replies: 11

Last updated: 28 August 2018
sandy craine on 27 February 2018

Category: Food & fitness

Replies: 7

Last updated: 3 March 2018

Adding Curcumin?
by Bronson_CLE (Mar 3)

Knowing that I won't die from CML but from the COPD and that the benefits from curcumin helps both is definitely a plus. I appreciate all your feedback.
Thank you!

by scuba (Mar 2)

One additional note - although it was my CML that motivated me to take Curcumin. The main benefit I am experiencing with Curmin is the elimination of arthritis and my skin has changed dramatically.

by Bronson_CLE (Mar 2)

Thank you Scuba for the reply.

by scuba (Mar 1)

Hi Kathy,
Research has shown that 8 grams of standarized Curcumin is needed per day to effect cancer cells in vivo.
Some Curcumin formulations boast of higher bio-availability (w/ bioperine ...aka
Category: Food & fitness

Replies: 7

Last updated: 3 March 2018
Lucas on 19 February 2018

Category: Food & fitness

Replies: 3

Last updated: 20 February 2018

Lipase rollercoaster
by Lucas (Feb 20)

Thank you, David and Sandy. i read that paper last year, when my lipase started to elevate. Funny thing is that the patient with crazy levels, even in lower dose, still have high lipase. I'm talking

by sandy craine (Feb 20)

Hi Lucas,
David's link to the paper on elevation in pancreatic enzymes experienced by some patients who are treated with nilotinib, is a very informative read. Thanks David- I have put this on

by David Fitz (Feb 19)

Hi Lucas -
I presume you found this paper? Seems like the issues you have are, if not common, quite possibly linked to nilotinib..
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2791949/pdf/

by Lucas (Feb 19)

Hey, guys! Hope everybody's fine! I just want to share my lipase history with you. Well, since january/2017 i'm having problems with high lipase, and amylase. Sometimes very, very high, like four
Category: Food & fitness

Replies: 3

Last updated: 20 February 2018
Rebecca Bonnell on 12 November 2016

Category: Food & fitness

Replies: 7

Last updated: 30 January 2018

Extreme Fatigue with CML and the drug Imatinib
by Carolinemb (Jan 30)

Thanks for replying Sandy x

by sandy craine (Jan 30)

This list is personal to me... so it depends on what you personally need - generally I try to take the following Vitamins and minerals on a daily basis:
Vitamin C in the form of ascorbic acid powder

by Carolinemb (Jan 29)

Hi Sandy,

just wondered what the vitamin b complex is you take? And what other supplements you take?

Thanks Caroline

by EvaH (Feb 7)

Thanks....lot of info I didnt know there! Esp on citrus fruits and cranberry :-o
Your story got me wondering, I'm now 42 and was diagnosed last year. I have some savings and though some work
Category: Food & fitness

Replies: 7

Last updated: 30 January 2018
Shammell on 8 February 2016

Category: Food & fitness

Replies: 7

Last updated: 12 January 2018

6 Months into treatment and wanting to get fit again. But the weight wont shift!
by chrissie (Jan 12)

Oh goodness yes, yes ,yes. I got fed up with the weight gain on 400mgs imatinib and hit the gym 3 times a week + keep fit class+ walking miles in hilly Devon - and the weight remained the same

by Tidal-Life (Jan 12)

Just my few cents, not necessarily useful, just my experience as I find the topic interesting: "before" cml can be "way before" or just up-to/before diagnosis...in my case I started dieting 6

by EvaH (Jan 12)

Hi there

My sympathies, I also find it harder to shift weight now on imatanib. It took 3 months of being on 1500cal per day for me to shift anything and I visited my mum for 3 weeks and

by abhay (Jan 8)

I know this is tough task to do but doing ragular workout than you will found the changes in your body trust me keep practicing hard and harder as all as i can say to you now.

http://
Category: Food & fitness

Replies: 7

Last updated: 12 January 2018
sg3 on 21 December 2017

Category: Food & fitness

Replies: 2

Last updated: 22 December 2017

power plates
by sandy craine (Dec 22)

I reckon most kinds of exercise would be beneficial when CML is stable. At diagnosis, it would be best to be cautious due to possible problems with palates and possible enlarged spleen etc.

by David Fitz (Dec 22)

The vibrating exercise machines? Can't see any reason at all why not. They're pretty good, even if it is really funny trying to talk while using one!
David.

by sg3 (Dec 21)

Bit of a strange one ,but does anyone know if you can use power plates with CML ?
Category: Food & fitness

Replies: 2

Last updated: 22 December 2017
LS on 13 January 2016

Category: Food & fitness

Replies: 5

Last updated: 17 January 2016

Fasting program
by darley (Jan 17)

I got the distinct impression from the OP that rather than this being properly and appropriately linked to something like a "fasting window" that it was one of those totally whacky ideas

by LS (Jan 14)

Thanks! Good to know how others look at it!

by nigel (Jan 14)

Likewise, I must agree, to keep a good balanced diet, and your body " fuelled " to me seems quite logical and the route I would and do take.
Are you sure the fasting is not related to a

by David Fitz (Jan 14)

I strongly agree!
The most important thing is to keep yourself as healthy as possible, so a good balanced diet with plenty of nutritious food. I can't see how depriving your body of the
Category: Food & fitness

Replies: 5

Last updated: 17 January 2016
sandy craine on 26 June 2015

Category: Food & fitness

Replies: 1

Last updated: 27 June 2015

Magnesium vs Calcium levels
by johnw1001 (Jun 27)

Hi Sandy,

This is very useful information as we are not quite sure of the effects of long term use of tkis on bone health.Currently am on a calcium/magnesium supplement for muscle cramps and

by sandy craine (Jun 26)

The following articles may be of interest to those of us who may want to supplement magnesium to counter some side effects of TKIs and ... and quite frankly, life in general! Sandy http://www.
Category: Food & fitness

Replies: 1

Last updated: 27 June 2015