Hi everyone,
Just wondered if anyone on Glivec is having problems with hips as mine have been playing up for a while. It's not just the hip, it is also the left groin.
I will be off to the docs soon to see if I can have an xray to see what the matter is but wondered if anyone is having the same problem. I've been on Glivec 10 years in March and have had lots of other joint issues in the past since I've been on Glivec.
Absolutely, yes! You are not alone in this one...I was on Glivec for 18 months and sadly when I changed to Dasatinib, this was a side effect that stayed with me, but it might not for you if you have a change of TKI. I was ex-rayed and nothing seen.
However, I've recently had a Hernia op and they cut and tied the nerve in my groin at the same time and I believe I am seeing some improvement with that pain.
You have my sympathies, but no solutions I'm afraid!
Vickie
I know I have said this several times before but I really do find that I benefit from supplementing with magnesium. I did use the 'oil' for some time but it does leave a sticky residue ton the skin which I find uncomfortable.
So.... I looked for some other way of increasing my magnesium levels and found that Ancient Minerals now produce a cream version of the 'oil'. I have been using this for a week now and find it much more pleasant and easily absorbed. my energy levels have increased as well as joint/back pain. Overall I feel a lot better.
You can find all the products that Ancient Minerals produce here with lots of information about low magnesium symptoms, with low inter-cellular levels causing all sorts of health issues- including bone and muscle pain, cramps, tetany (similar to the side effect from imatinib, fatigue etc.
http://www.ancient-minerals.com/magnesium-deficiency/
Might be worth a try.
Sandy
Yes, sorry Sandy, you have indeed mentioned this before, but I think there may be something that I haven't understood, so please bear with me on this! I had thought that one used the Oil on each particular area of the body experiencing symptoms, but having scanned the article, I am now thinking that the idea is to use the skin to absorb the Magnesium into the body rather than a localised treatment for pain etc.
I think this may well be appropriate for me as I suffer too many "digestive" problems to take Magnesium as a supplement and gain any benefit from it.
Thank you Sandy, would love to have an increase in energy levels LOL!
Vickie
Hi Vickie, yes you have it right.
The point is that by using magnesium 'transdermally' -not a word but you know what I mean- it will be delivered through your skin into the cells. Every single cell needs magnesium, but blood tests do not really reflect the actual cellular level, just the plasma levels which can be near to 'normal'.
I have been using the cream version of magnesium oil over the last 2 or 3 weeks and every day I feel my energy levels have increased. I am not suffering from 'winter blues' or 'English weather blues'.
Earlier this year I had noticed I was suffering a little from palpitations especially on lying down at night- this just suddenly happened but I think it was because I had stopped using magnesium oil on a regular basis.... and levels of stress always increase around xmas time ;o)
Now the palpitations have disappeared almost entirely, and also my knee joints are no longer complaining when I walk up and down stairs.
It seems it does take some time to get the cellular levels up to optimum- and the cream is not that cheap either- but I think it is worth the investment and hope to get myself back to the same level of fitness I had in summer last year.
Hope it works as well for you.
BTW you can also rub it directly into aching/painful joints at the same time as using it twice daily on the 'fleshier' parts of the body.
Sandy
I bought some spray oil today in my local shop and was given a lot of helpful advice about how much to use, ie if two or three sprays makes the skin tingle, this indicates low magnesium levels and to start on a lower dosage and build up. Initially it is expensive, but it does say 800 sprays, so 2/3 sprays a day should be quite economical. As my hip/groin is absolutely dire today, I sprayed directly onto that area. The fatigue caused by the TKI's really gets me down...I've recently been at home getting over an op and found myself to be every bit as exhausted as I am when I'm working. BTW, I am having some success at getting through the waking up process a little quicker by having a Daylight bulb in a nice globe lamp at the end of my kitchen table where I eat breakfast. These things have to be worth a try for small outlay.
Thanks Sandy, really looking forward to any increase in energy levels that's for sure..
Vickie
