I have found this forum and thought some of you may be able to help.
About 6 weeks ago I was diagnosed with CML. I was put straight on to Nilotininb (also called Tasigna) after my chemotherapy treatment . I have been on 300mg x 2 daily. However today's blood test showed that I have a low platelet count at 42, below the recommended minimum level of 50. As a result my doctor has taken me off Nilotininb until this Friday where they will check my blood again.
As it seems with CML, there are always ups and downs. I was just wondering if anyone has had the same issue and what treatment your doctors advised as a result. Did your platelet count increase after a period off the Nilotinib? Did you go on a decreased dose of Nilotinib following that and did that help?
Any experiences revolving around this would be of interest. Thanks and hopefully hear back from some of you.