Hi everyone.
This seems to be the best site to find information as well as discuss with other people that are living with CML.
My son was diagnosed about 1 month ago with CML. He is 2.5 years old. He has been on Imatinib for 3 weeks and seems to be doing ok.
Is there anyone out there that dealt with this from a young age???
Thanks,
X's Dad
I am so sorry that your child has been diagnosed with CML- and at such a young age. Over the years there have been quite a few young people and children who's parents or carers have posted on this forum. As far as I am aware all have done well, either with TKI therapy and/or SCT.
I do hope your child is being treated at a specialist centre that has access to expert CML clinicians. I assume you are in the UK?
There is a facebook group specifically for children with CML- you might find it helpful to speak to other parents who are members on there.
here is the link:
https://www.facebook.com/groups/207664421574/
Meanwhile if you need any support for yourself or advice on available therapies and/or how to deal with side effects etc- please do not hesitate to ask on this forum
Sandy
