Hello and thank you to the people behind this forum, what an amazing comfort to know there are people out there with personal experience of CML and an immense treasure trove of knowledge and support.
My husband (diagnosed end of November 2017) is on Imatinib. For his first 5 days he was on Hydroxycarbamide, but once diagnosis was confirmed he started Imatinib. He was on it for 12 days before his consultant suggested he had a break for a week as his liver enzymes were very high: ALT was 165 and Alkaline Phosphatase 871. He's been back on it now for 2 weeks, and the enzymes levels have gone up again, although we don't have the exact figures, from memory we think it was in the order of 130 and 300 respectively and the white blood cells had gone up to 30 from 11 last week. The consultant said give it another week before he will decide what next, as it may prove to be everything catching up after the week off in mid December.
Does anyone have similar experiences and should I seek out some Milk Thistle or just chill and not worry too much?!
