Hi Chuck. On 100 mg Sprycel just this past 4 weeks after 3 months on Imatinib. Am resistant to Imatinib, thus the change. Pray Sprycel works. My original diagnosis was Dec 1,2017. No,weight loss.
With Sprycel I have noticed a definite change in the way things taste. Pepper and spices much more intense, too much so, so I have had to change my eating patterns. Can’t eat stuff I love, it tastes bad. My own cooking tastes different.not good but my husband notices no change. Bland, which I never cared for, is wonderful. Vanilla ice cream and oatmeal are wonderful. What a shock. Unfortunately, no weight loss.
The only Sprycel side effects so far, aside from fatigue, are skin sensitivity..itching in various places and times and the the change in taste of everything. My hair is thinning.
Because I cannot take any NSAID my osteoarthritis is a frequent intruder. Sometimes Sprycel seems to make it worse, but who can really tell. I cannot medicate it. Other than that I seem, so far, to be fortunate with minimum side effects compared to what I read on this site. All we can do now is hope the Sprycel brings down the blood counts. I seem to,be a turtle. Next BCR ABL is in June.
I did ask my Onc about Curcumin. From this list It seems many people with arthritic inflammation are helped. My Curcumin question was referred to a pharmacologist who explained that with my genetic makeup...they had done a DNA on me as part of a study on people resistant to Imatinib ..I should avoid Curcumin as it could cause certain blood problems. I have a more detailed explanation but don’t want to go into a long explanation. My Onc is at Mayo Clinic in Minnesota. I am in Minneapolis where we had a mid April blizzard 10days ago and the ice is still on the neighborhood lake. Maybe spring will come next week and my CBC will trend downwards.
my best to all on this list in our journey. I do appreciate the discussions and learn a lot. Gitel...jdb