Not sure where to begin. I was diagnosed with CML in May 2017. After being on Humira for lengthy time for ankylosing spondylitis. I was started on Sprycel which my CML responded to, but after 8 months and a kidney biopsy. I was told I had 45% damage to kidneys most likely drug induced (Spyrcel). So after 6 weeks of being off Chemo drugs, and a slight improvement in Kidney function and return of CML from it's remission. I was now placed on Tasigna 400mg in am and night. Since about day 2 of this new drug I have had extreme muscle pain in my sides and abdominal pain. I told my Oncologist who believed it wasn't the new Chemo drug ( He didn't think the first drug Sprycel caused Kidney issues either), but something else. Well yes it turned out I have pneumonia. After a few days on antibiotics, I am still in extreme pain. Can't take anything but Tylenol since anti inflammatory would be stress on my already damaged Kidneys. I suppose I am wondering if any have had similar experiences as me. I haven't even had the diagnoses for one year yet. I don't feel like this is living. It is just breathing. Thanks in advance.
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Sorry to hear about your pneumonia and pain. I don't have much to offer except empathy and a few suggestions I've heard of but don't know much about. Others here will have more informed replies. My doctor recommended yoga for joint pain. There is a lot of merit to alternative therapies for pain, including mindfulness, meditation, and specific thought techniques. I talked with someone yesterday who has had debilitating pain and has found great success with something called acceptance and commitment therapy. Acupuncture apparently works for many, as well. But your problems seem to be treatable and the pain will be relieved when the kidney and pneumonia issues have resolved. Others on this site have recommended talking with their doctor about dose reduction to address pain. That would seem to be indicated in your situation. My diagnosis was just a month before yours and fortunately I have had pretty good results with imatinib. Best wishes to you and keep looking for answers! There is hope!