Tasigna hair loss

I have a lot of hair loss and to be honest with you I am pretty worried....thank you for sharing your experience!I hope it will stop eventually.

Hi Sandy,
Thank you very much for your advice and I hope also for you to get better with the symptoms.You are so right!I noticed the same thing also for my nails at the beginning of treatment now they are back to normal.
My next pcr is on March and if my results are good I will discuss about lowering the dose.
Thanks a lot and I wish you a great year!
Best,Vicky

Hi,I have had extremely dry frizzy hair it has been driving me mad ,I have tried everything and nothing has made any difference.Someone recommended Philip Kingsley products to me so I bought Elasticizer  which is a pre shampoo treatment and body building shampoo and conditioner in a lovely Pomegranate and cassis fragrance and I have to say it is absolutely fabulous .You will feel the difference from the very first use ,my hair feels like hair now instead of straw ,it works like magic,it's quite expensive but well worth it .My eyebrows went really thin but I got them back due to massage ,when you put your moisturiser on your face really massage it into your eyebrows as much as you can and hopefully they will come back ,Good Luck ,Denise.

When I was on full dose Tasigna (600 mg/day), my hair stopped growing but I didn't have noticeable loss.  I am now on 1/4 full dose or 150 mg/day and my hair grows almost as fast as it used to in the good old days.  Since you are a fast responder, as was I, dose reduction should help alleviate this problem and your doctor should be amenable to letting you try assuming you have been MMR or better for at least 1 year.  I reduced dose to 450 mg  6 months into treatment due to other more serious side effects and then to 300 mg at 9 months and then to 150 mg at 1 year.  PCR has been <.003% or "negative" since the 9 month mark (June 2017).

Thank you very much for sharing your experience with me. I have an appointment with my doctor on Thursday, I will discuss with him the dose reduction.

Thanks again & all the best!

Kind regards,

Vicky

Thank you Denise for all your tips & advice!Good luck to you too!

Best,

Vicky

Are you by chance taking anything else new?  I thought my TKI was causing hair loss but it ended up being another prescription my GP gave me.  Threw it out and my hair loss stopped.  The texture has changed and this I do credit to the TKI.

Steff

Hi Faith!

That's great news!Congratulations for the MMR!

Sorry to say that, but the only thing you can do is be patient and wait. The loss will stop eventually and hair will grow again. If I remember well, this happened after 8 months since beginning treatment. Personally, I had a big problem with my eyebrows(almost lost all hair) and in order to have the problem partially restored, I did a technique in my eyebrows called microblading. This gave me a psychological boost :)

Also, an option perhaps could be to discuss with your doctor to lower the dose at 600mg per day?

Best,

Vicky

Hi Faith,
I also had a serious hair loss which started 3 months after I started treatment with Tasigna 600mg (Oct 2020) and this hair loss continued for a period of 3-4 months. Almost one third of my hair and eyebrows were gone. I was really worried and felt very bad about it. I tried some specialized shampoos, lotions, vitamins, oils for hair nutrition but nothing helped. Due to fast response to treatment I reduced my Tasigna dosage in Apr 2020 to 550mg and in July 2020 to 500mg. Now my hair and eyebrows are not falling and I have a feeling that there is a slight improvement. I am really impatient to make further dosage reductions in order my hair to recover and also to reduce other side effects.
Wish you luck and success in fighting CML and please share in case you find a solution for your hair loss.
Lucky

You could try a product called 'Absolute Collagen' - available here in the UK. 

Sandy

Thank you for this recommendation.

I bought a jar this evening and am awaiting anxiously for it to arrive. 

I've been struggling with course straw hair for MONTHS. I've been telling my Dr but she didn't think that was a known side effect.

I am taking 600mg of Tasignia, I've got a phone call into her asking if I can cut in half. Cannot stand my hair like this!

Thank you so much!

Hi,so glad you have bought this it will deffo work for you .Leave it on overnight if you can or as long as possible the first time for maximum results .If you can afford to the shampoo and conditioner is fabulous too ,I look out for bargain prices on EBay .Would love to hear how you get on with it ,I am sure you will be delighted as I am .I don't use anything else now.Good Luck, Denise.

Hi, Philip Kingsley Trichologist products .If you have really dry frizzy brittle hair Elasticizer is fabulous and works from the first use .I use the shampoo and conditioner too in the pomegranate and Cassis fragrance which makes your hair smell lovely for a few days .I am not saying it will improve hair loss but lessens snapping and improves the condition.I first bought this on QVCUK check out the reviews .Hope this helps ,Good Luck ,Denise.

SUCH a personal relief! I've used the product twice now and am AMAZED at how quickly it worked.

Even my others have mentioned how great my hairs looking (which reenforces to me how bad it looked if people are commenting, lol).

Thank you Thank you Thank you

Yes I was on these tablets and suffered the same, having very thick hair my hair has thinned greatly, and turned finer, also lost boy hair in every area. 
I mentioned this to my consultant and he said it could be something else but it only started when I went on these Nilotinib I wasn’t on them long, just a couple of months as it was discovered I had a mutation, prior to that I was on anther one I forget the name, I was on them for about 14 months, with no hair loss,  I am now on ponatinib. I am hoping obviously that this tablet will work, and maybe my hair loss will stop and recover .

meanwhile I’ve been put on the bone marrow transplant list, I’m praying it doesn’t lead to that very involved procedure.

Norma 

Yes, I started getting a hugely itchy scalp, and my hair is fine dry and fizzy..also got a dry scalp. 
I was on these tablets for just a couple of months after a month I started noticing the hair on my arms thin and disappear also my legs. But my hair has thinned out greatly..

my nails are so thin too, but then your nails are made of hair. 
 

norma 

When I used Tasigna, my hair didn't fall out much, and even when I noticed it, I just tried to minimize stress and improve my nutrition. But suppose your hair falls out a lot. In that case, you need to see a doctor so that he can lower your dose or prescribes some supplements or medications to maintain hair on your head because this is not normal. Although my husband has never taken any medications in his life, he started to go bald abruptly. I think that next year he will go to this clinic (link removed) to have a hair transplant because he is already tired of his terrible hairstyle.