This one is in continuation to my previous question- https://cmlsupport.org.uk/thread/13192/no-more-sandoz-others-cause-side-... - however thought it is worth a new thread.
After discussion with my heamatologist at my appointment (for reasons of lack of medication availability - refer link above), I have now stopped my medication after taking it for about 4 years 3 months.
Although the Dr was herself convinced on the results of previous studies, she mentioned that currently there is no mandate for them on stopping medication at this point in time. They are expecting such a mandate to come possibly in early next year or so - and hence this will be fully on me.
Either ways, I am under a 6 week blood test observation cycle, to be reviewed under in-person appointments every 3 months.
4 weeks into stopping medication now, I am feeling quite similar side effects that I had felt when I started the medication - but at a much lighter note - for e.g. Rib cage pain / back pains / weakness / muscular pains - full body & breathlessness - which for me was due to severe acquired anemia. I am guessing all this will ease of in the coming weeks. Fingers crossed and hoping for the best.
Would be keen to know if there are others who have also stopped like myself and how did it work out for them.
Thanks,
D
