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Nilotinib - feeling very exhausted

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Hi there,

It's been 9 months since I am on Tasigna 400 mg BD and am on MMR(25-sep).

Since couple of days I am feeling very low and exhausted. Very lathergic n fatigue.

I almost have the same symptoms like I used to have a during my starting days of nilotinib(fatigue,bone pain, muscle pain,feeling very low, breast bone, joints pain and feeling cold always).

I am bit concerned. Is this normal? Kindly help with your suggestion.

Regards
KY

Hi there,

I'm sorry to hear you're not feeling so good. Fatigue can be difficult to manage. 

Firstly, this isn't a sign of your CML making a comeback or anything - so I hope you weren't worrying about that. Sometimes we can get a bit run down. I caught a virus about a month ago and though fought off the symptoms of that pretty quickly felt extremely fatigued for some time after and am only just starting to feel a bit better. My haematologist said post viral fatigue is very real, but not that well understood. 

David.