I'll apologize in advance for some mistakes in English since I'm from Estonia.
I was diagnosed with CML in December 2018 which was a huge shock initially. I didn't know ANYTHING about leukemia or that there are different types of it. I started with imatinib but didn't respond well to it so my doctor changed the medicine to nilotinib (Tasigna) in July. My BCR/ABL (I'm not sure if I'm wording it right) was 2% at the time so not ideal.
Today I got new PCR test results and my BCR/ABL is 0.02% which in my understanding is a cause for celebration.
Basically what I'm asking is: am I doing okay now? I feel better, I want to celebrate a milestone but I still feel I don't understand my own condition well enough so there are some fears. My doctor told me that they won't be doing tests from the bone marrow anymore unless there is a suspicion that the illness has gone worse. While I'm happy about it (the bone marrow tests hurt like hell) I'm afraid that maybe when it's going badly they wont see it just from the blood tests. I'm not sure if it's even possible but like I said, I feel like I don't know enough.