I have an appointment with a speech therapist on Friday. I ask because my primary care doctor thinks I should pursue speech therapy to try to ascertain the source of the problem. I've looked through the forum and it seems my speech difficulty is unique, not a side effect of the TKIs that others have experienced? Knowing if others have had this challenge may be useful in trying to get to the root of my speech problem.
I've had speech difficulties that started in late July on nilotinib, but seemed to mostly abate when I was taken off nilotinib due to TIA. I've been on dasatinib since early August, 100 mg to start and 50 mg as of early October. My difficulty seems to be mostly finding words. The problem surges, then slowly dissipates. I normally speak very fast, with no troubles keeping up with my thoughts. I'm learning to slow down to accommodate the problem. Given how fast I normally talk most of the time only people who know me well notice. On particularly bad days I've had to end conversations as best I can when I just can't find words. On good days I'm the only one who notices a bit of hesitation pulling the needed word from my mental files, or the occasional skipped syllable in speech. Of course I've had a particularly good week for speech this past week now that I've finally made it off the wait list for a speech therapy appointment. But the problem has escalated a couple times, once badly at the end of October, so I'm going forward with the appointment. I've found the inability to communicate well to be quite upsetting, and the return to good speech puts me in a much better frame of mind.