Hi all. I’m Vania from Indonesia.
My boyfriend was just diagnosed with Ph+ CML a month ago and we’re still trying to get Gleevec, the only TKI available here in the country.
He’s been coughing for like 4months now, and it wasn’t getting any better, high fever, fatigue (quite extreme), accelerated heart rate and so on.
He even got pericardial effusion (only within a month his heart got 1.5x normal size), and that was the beginning of the finding of CML.
He got anemic also, Hb was around 8, erythrocyte was around 3.14.
I was quite terrified at first, with this whole new stuff and us getting married next October. I just hope he will get so, so much better than now then. I was broken seeing him weak and all like this. Hopefully we will start the medication today.
In that darkness, thanks to this website and forum, I found hope to fight this. Although I’m not from UK, but here I found so many useful things to cope up with the disease.
Nice to know you all. Wishing us all the best to fight CML.
Vania.