I just got the results from my recent (2/13/2020) PCR. In November, after 3 months of alternate day therapy in which my results went from CMR (on 20 mg every day) to 0.0032, my most recent result is 0.004. So, essentially the same. I want to use up my 50 mg Sprycel before they expire in July and Dr. A-K does not have a problem with me splitting my tablets so I will be taking slightly more than 20 mg every other day for the next 3 months.
I'm still draining but it's down to every other day. The pulmonologists and oncologists don't know if the Sprycel continues to cause this. My presentation of one lung involvement only (both times, though) is so very unusual. Nor had the pulmonologists ever seen anything like the tissue biopsy of my pleura which turned out to be just inflammatory tissue. When Mayo hasn't seen something one has to wonder.
As we continue to deal with CML and side effects I try to keep good thoughts of peace and comfort for us all!
I've attached links to my posts on the LLS site about my ongoing pleural effusion if anyone is interested.
https://communityview.lls.org/statuses/5175
https://communityview.lls.org/statuses/5443