My doctor increased dosage and now i feel like hell...

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Blood tests

Mon, 20/04/2020 - 1:42pm

Good morning everyone, i really need some word of wisdoms here please🙏
I have been on Sprycel for 1 year now and it works for me, at beginning my platelets were high for the 100 mmg dosage, but then I adapted to the 50 mmg and my BCR went down to 0.914 then 0.444 and lately 0.667 and finally 0.915 again...

my doctor freaked out and spiked the dosage to 70 mmg and now i feel again sluggish and different.. WHATS GOING ON?

I am a bit concerned because the trend is going back, but is this a sign of concern or should i change TKI or doctor! Not sure what im doing wrong..

please some help here.

gian

snowman 35

In reply to Gian P

Mon, 20/04/2020 - 3:43pm

Hi Gian. What do you feel exactly?

Gian P

In reply to snowman 35

Mon, 20/04/2020 - 3:46pm

I have this upper back pain, occasional shortage of breath, which are the same symptoms of when i used to take 100 mmg ( the symptoms went away after i switch to 50 mmg ) a bit drowsy and letargic, but i can run for miles on my treadmill and my breathing is perfect... so not sure if is Pleural Effusion or allergies, but i am almost sure is the new dosage.

my question really is if because the spike on BCR from 0.414 to 0.914 can be a sign that the meds don’t work and if is the right answer to increase dosage.

i also should say that while i got good news few months back i splurge a little on wine ( 1-2 glass ) occasionally, sugars etc..

what you thinking? Thank you by the way for asking.

snowman 35

In reply to Gian P

Mon, 20/04/2020 - 5:59pm

What time do you take Sprycel? Do you have the symptoms all day? You can try to take it at night!For your back pain I am sure that a supplement of curcumin can help you a lot but Scuba is the right person to guide you for this
If you had shortness of breath you wouldn t be able to run!
Alcohol does not intrefer with this but you should drink at least 7-8 hours after your pill because alcohol matbolized by liver!

Gian P

In reply to snowman 35

Mon, 20/04/2020 - 6:08pm

Thank you! I love you guys.. everyone share their experiences and thats what make this site so unique.

i will move slowly toward 8 pm and try to move it up everyday of an hour until i get to 8 pm and just stay there.
as far as wine I don’t drink enough to be a problem but i will stay away from around the pill time.

as far as curcumin i bought it and it was fantastic while i took it. However i started to see my BCR going up and I chickened out... Scuba, can you get me some directions? Or anybody who tried this before?

thank you all.

gian

snowman 35

In reply to Gian P

Mon, 20/04/2020 - 6:30pm

Whoever tried curcumin had better results at Bcr levels!
Also check your vitamin D levels!
Regarding to the time just take it tomorrow at the time you want there is no need to take it every day one hour later!