As mentioned in the title, I have still not received a letter from NHS England advising me that I am 'clinically vulnerable'. I have had CML for just over 8 years, on 50mg of Dasatinib and have been undetectable for the last 12 months.
I spoke my GP practice, who had no idea whether I would get a letter, they recommended that I speak to my consultant. So I did, and as per the advice from the NCRI CML Subgroup (that I presume she had seen online?) she didn't believe that I was at risk as my CML is stable, I'm 49 years old and don't have any other health issues.
However, as per the Leukaemia Care, 'Coronavirus & CML' online webinar this morning, Prof O'Brien stated that Public Health England advice 'trumps' all other advice and that all CML patients should have received letters.
So what do I do now? Ask my consultant to change her clinical opinion and ensure I get one?
I'm relatively lucky, I can work from home and have been since the 9th March (my employers were very keen that I stayed away from the big open plan office). But what happens after my 12 weeks of shielding if I can't provide them with a letter that says I should be staying at home for as long as this takes?