Hi All
I was diagnosed with CML in Dec 2017 and was on dasinitab 100 mg since them. Achieved molecular remission in April 2018 and have since been ND
In 2020 my test in January was ND. Unfortunately the test in July 2020 came with surprise with the PCR- ABL jumping to 6%
Also from June had this burning/heaty session in body hence had stopped the meds for a few days in June 2020 and restarted the same.
We followed with another test in July 25 where in the level came down slightly to 4.5%. Now my blood has been sent for mutation studies
The doctor feels that we should change the medicine to Nilotinib once the mutation studies come in.
Any views from the forum. Am quite confused with the sudden change in my status
Thanks Jaideep