I see many similarities between me, Eva, CM-elon and Alex. I was also 42 when diagnosed, with two young children. My initial concern was not seeing them leave school but that passed over time as it became clear things were under control and that my life expectancy was unlikely to be affected by CML. They have now both left school and I'm enjoying seeing what they are making of their lives now. I lost my father when he was 62 (and I 32) to a brain tumour and that, together with my CML, made me focus hard on trying to enjoy the moment and not stress too much about the future (including not relying on being able to do things later in life if you can do them now).
I have never seen it as a "battle" with CML - I felt that to see it that way would be too stressful. I decided to try to go with the flow, not push against it and learn to live with it. I got comfortable with how things were going and trusted my doctors. My consultant once said to me "let us do the worrying for you". One of many brilliant bits of advice she has given me over the years.
Nearly 12 years post diagnosis, I still don't take anything for granted but have been pretty much convinced for some time that CML won't be the cause of my demise... Which does indeed make me feel sometimes like a bit of a fraud. I went on the UK stopping trial - which was obviously a bit of a risk and involved volunteering for another bone marrow biopsy - because I felt it might be helpful in aiding the identification of patients who could stop. That has offset my feeling of fraudulence a little, at least in my head.... and a bonus is I've been able to stay off TKIs for some time now. I know I am, in the grand scheme of things, pretty lucky.
I travel, exercise (tho nothing to do with CML really) and enjoy a glass of wine. I drink less than I did - and indeed when I started on imatinib I pretty much stopped completely because I really didn't feel like it to begin with. Now its a case of hangovers getting worse with age so I just ease off.
I wish everyone good luck and health.