I just received my 6 month PCR and it has risen to 18 % from 11 % at 4,5 months (at DX 80 and 3 months 16 %). This happened after having a two week break in the end of april/beginning of May and otherwise being on low dose nilotinib (400 mg daily). I must say I am getting quite scared of my treatment perspective since I was really hoping that even the low dose nilotinib has pushed me at least below 10 %. I am not able to take standard doses since my platelets (and somewhat ANC) are low.
I know that dasatinib is an option. And when rationalizing things, I know that nilotinib does not have had the chance but the anxiety and fear is getting the best of me at the moment. I know I am not running out of options but I expected much more quicker treatment response (as do we all) and I am getting the feeling that my CML is not so simple to treat.
Has anyone been in a pickle like this and can relate?