You are here

Bcr abl a little up

Categories:

Hi all
I just got my pcr test and from undetected now is 0.004.Except one more time in the past that was 0.002 all the other PCR was undetected .I am starting freaking out now....I take sprycel 70mg

This is nothing to worry about. Variation in the third placed of decimal in the result is likely an artefact of the test process and nothing to do with your disease. The third place has only been reported in recent years when the labs got new equipment to produce it. The earlier kit only gave 2 decimal places so we didn't see this type of result. Remember that MMR at 0.1% is the aim - even if this is a true test result of your blood you are still 250 times less than that.

Some people find the concepts at the start of this presentation useful in understanding what the results mean - it may help and I hope it does. Watch the first chart Prof Clake describes. https://cmlsupport.org.uk/node/20131

Best wishes and chill.

Alastair

It is hard to manage the anxiety that causes me at the time but I totally understand what you say!Thank you!

Oh this sucks!
I remember the feeling all too well

Happened to me about 6 months into TFR but please wait, it may well go down again. It did in my case and its stayed undectable.