Hi everyone hope you are all doing ok.
I have had Cml since October 2021 and to the day have been on Nilotinib 600mg. I have had a consultation today and my PCR/ABL is 0.003%.
I am doing good, just the usual side effects ie on and off bone pain, headaches, dizziness, etc but manage ok.
I just wanted some thoughts on whether 600mg is too much and if anyone who is on Nilotinib has had dose reduction and how they have got on.
My consultant is absolutely adamant I need to carry on with the same dosage, I know it’s a difficult one.
Thank you to everyone on this forum as your insight is appreciated and valued.
Min
