It appears I have dropped out of undetected status on Nilotinib. Right at the point I was going to try TFR on my 2 year anniversary my number jumped from 0.000 to 0.0165 which is higher then it was 2 months into when when I started on Nilotinib in 202205 when it was around 0.0197. Not sure what happened. I’m right back to where I was in 202203 when I plateaued on Imatinib. I have an appt with my doc on the 9th. Will discuss next steps then. Not sure what to do but I’m thinking of maintaining a holding pattern for at least a month or two till my next reading. TFR of course is off the table. I don’t see that in my future anytime soon.
You are here
Suddenly dropped out of undetected status
Categories:
Much appreciated Paul. Yes one of the hardest aspects of dealing with a setback is wrestling with all the thoughts that flood the conscious mind. It’s not my first rodeo and I know the sooner I accept my state of being the more content I will be. To live in the present as opposed to the past or future is my goal now. It’s truly the only place I can remain calm and sane.
Hello Joe,
It’s Mrs Rambler here. I really love your ‘rodeo’ analogy. Thanks for the big smile.
I have an analogy I quite like to use, that comes from financial crisis days. We sometimes heard the phrase “kicking the can down the road”. I feel that’s what happens with some CML patients. In the nicest possible way, Paul is the can!
Even before Paul was diagnosed we had a family motto, but it’s even more relevant now…..
“Don’t put off the good stuff”.
Wishing you all the very best Joe x