Hi All,
If anyone is curios I just post my BCR-ABL results during the years I was on Nilotinib 2x300 mg all the time.
Some notes.
1. I had to change labs for a while and the second lab showed consistently a dimension higher results (MR3 only). Both Labs are verified the same way though so strange.
2. I was experimenting with high dosage of vitamin D and other stuff (Magnesium, Vitamin K, C, Selenium etc.). I have taken about 1000mg curcumin with bioperine most of the time. I don't see any effect of them to be honest. My CML hasn't progressed though so we will never know if those supplements really helped
3. My liver enzymes were really bad so I stopped taking curcumin for example. They were like 130 U/L Gamma GT (other enzymes are also high). This will be interesting if you check the table.
4. When I was diagnosed I had a D-Vit level of 16 ng/ml
5. My nilotinib dosage was cut to half in June 2025
6. Funny that on half dosage nilotinib and less supplement I reached my record low BCR-ABL.
7. I can tell you that by the reason of my bad liver results and I also have high bad cholesterol some elevated (blood sugar 5.4 fastingand actually everything was bad in my blood test) I was very stressed and anxious in the last 2 years. I couldn't really handle that so I started mindfulness and kind of "healing meditation" daily a couple of months ago. So as you see magic helps BCR-ABL :) (just jokeing but I could believe that it helps).
Date_______Lab A______Lab B_____Notes
12/17/2018____95% This 95% is not a BCR-ABL test. I don't remember what was it but this is the time I got diagnosed
2/1/2019____13.89
3/22/2019____0.854
7/5/2019____0.06
12/20/2019____0.024
3/13/2020____0.01
7/13/2020____0.107
8/12/2020____0.072
9/24/2020____0.058
12/15/2020____0.034
3/18/2021____0.022
5/31/2021____0.012
8/30/2021____0.009
11/30/2021____0.007 I started to take High dosage vitamin D and curcumin around here
2/21/2022____0.005
5/31/2022____0.006
8/30/2022 _____________0.06
1/10/2023 _____________0.05
6/20/2023 _____________0.04
12/5/2023 _____________0.02
5/28/2024 _____________0.04
9/2/2024____0.006
11/25/2024____0.004
3/6/2025____0.005 half dosage nilotinib starting from june
7/3/20205____0.005 not really taking curcumin anymore
8/18/2025____0.003 3 months on half dosage