So after my last post to the forum back in October saying that after nearly 4 years of hitting MMR, I got some bad news as my PCR had jumped up from 0.045 to 0.125 and they had found a mutation in the CML for the first time.
Before xmas I visited the Hammersmith to discuss the implications and next steps. As my local PCT (Reading) do my prescriptions I am waiting the outcomes of discussions between the 2 as to what they will fund as there are 2 options for me either an increase in Gleevec to 600mg a day or moving to Dastanib or Nilotinib. So I am just waiting to hear from them but I know these things can take a while to sort out.
Rob