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I have found the cml support group invaluable. All the questions (including those I'd never thought of) and answers are there. It is so encouraging to know other people have similar experiences of living with cml, and the diagnosis is not the end of the world.
After I was diagnosed, I scoured the internet for answers to all my questions. By far the richest source of information and help was CML Support. The advice from members has proved invaluable ever since. I really don't know what I would have done without them.
I was diagnosed in 1999, before the advent of TKI therapy but was fortunate enough to enter the Phase II trial of Imatinib. I set up CML Support in 2000 and the experience of helping other people has certainly helped me and my family cope with what is a lifelong diagnosis.