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admin on 22 August 2006

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Last updated: 22 August 2006

Forum Test 2
by admin (Aug 22)

This is a test. Testing 123.
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Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

Category: Uncategorised

Replies: 0

Last updated: 22 August 2006

Forum Test 1
by admin (Aug 22)

This is a test. Testing 123.
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
Barbs on 20 August 2006

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Replies: 0

Last updated: 20 August 2006

PCR result
by Barbs (Aug 20)

Dear all,

hope you're all Ok, just got back from holiday, my PCR result was waiting for me - undetectable!!

Moreover my T8 was down from 62 to 20%.

Congratulations to Sandy,
Category: Uncategorised

Replies: 0

Last updated: 20 August 2006
Des on 17 August 2006

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Replies: 0

Last updated: 17 August 2006

eye problems
by Des (Aug 17)

After 3 years on Glivec I have had a lumpiness on the white of my eye, which seems to be a bit squidgy. My eye has now become red and possibly infected. My GP seems to think that the CML may be
Category: Uncategorised

Replies: 0

Last updated: 17 August 2006
jaynelister on 17 August 2006

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Replies: 0

Last updated: 17 August 2006

Aaron's A Level Results
by jaynelister (Aug 17)

Hi everyone, Just wanted to share Aaron's good news with you all. He has got the A Level grades that he wanted to get him into his University of choice - Aberystwyth. He achieved a B,C,D & D.
Im
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Replies: 0

Last updated: 17 August 2006
Sandra E on 16 August 2006

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Replies: 0

Last updated: 16 August 2006

PCR finally back down
by Sandra E (Aug 16)

After much difficulty, I finally got the PCR back that was done over a month ago. (I think Genzyme has a bad FAX number for my doctor.)
Anyway, after the increase to 600 mg Gleevec back in
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Replies: 0

Last updated: 16 August 2006
Steven D on 16 August 2006

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Replies: 0

Last updated: 16 August 2006

2 years today since DX
by Steven D (Aug 16)

Today is the second anniversary to the day since I was diagnosed with CML.
Coincidentally I also had my HH appointment where Eduardo told me my PCR was down to 0.13. Slowly it is coming down.
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Replies: 0

Last updated: 16 August 2006
sharon morris on 16 August 2006

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Replies: 0

Last updated: 16 August 2006

CML after pregnancy
by sharon morris (Aug 16)

Hi,

Hope everybody is well. I thought that I would update after my pregnancy. My baby girl is exactly 7 months now and crawling! A right activity bundle...seems fascinated with plant pots! She
Category: Uncategorised

Replies: 0

Last updated: 16 August 2006
mariansy on 16 August 2006

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Replies: 0

Last updated: 16 August 2006

Biopsy resullts
by mariansy (Aug 16)

Hi all
I am one happy bunny today as have just received my 6/7 month biopsy results, bloods all within normal range for me, and marrow showing no excess blasts or philadelpia chromosomes.
My PCR
Category: Uncategorised

Replies: 0

Last updated: 16 August 2006
Paul Cooke on 16 August 2006

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Replies: 0

Last updated: 16 August 2006

SECURITY MEASURES ON FLIGHTS - TAKING MEDICATION ON BOARD
by Paul Cooke (Aug 16)

Has anyone come up against the issue of taking medication on flights since the new security measures were implemented last week.

I know things have eased a little now, but wonder what other's
Category: Uncategorised

Replies: 0

Last updated: 16 August 2006
Elizabeth Rees on 14 August 2006

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Replies: 0

Last updated: 14 August 2006

For Amanda and Ricky Evans
by Elizabeth Rees (Aug 14)

Hope one of you sees the message. Really would love some news, your gorgeous baby will be nearing 7 months now. How are you doing Amanda ? Got your work email will try that also.

Please get
Category: Uncategorised

Replies: 0

Last updated: 14 August 2006
Basil from RSA on 13 August 2006

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Replies: 0

Last updated: 13 August 2006

Eye bleeds and what I found
by Basil from RSA (Aug 13)

I read a comment on the old forum that the individual had found that coffee had helped to reduce eye bleeds.

Well I was desperate as I seemed to forever be experiencing them. At least two a
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Replies: 0

Last updated: 13 August 2006
Peter Miles on 10 August 2006

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Replies: 0

Last updated: 10 August 2006

UK Transplant Games
by Peter Miles (Aug 10)

Hi Everyone!

Anyone going to the UK Transplant Games in Bath next weekend? My first time.

Peter
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Replies: 0

Last updated: 10 August 2006
Sandra E on 9 August 2006

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Replies: 0

Last updated: 9 August 2006

traveling with CML
by Sandra E (Aug 9)

For my American colleagues: I am going to Ireland in October. Am I honor-bound to tell the travel agent/tour operator that I have leukemia? I have purchased trip cancellation insurance.
Sandy E
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Replies: 0

Last updated: 9 August 2006
hoofinruth on 8 August 2006

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Replies: 0

Last updated: 8 August 2006

Vasculitis
by hoofinruth (Aug 8)

A few weeks ago I posted about the large purple marks that my mother has, particularly on her forearms but that are now appearing on her legs.
Her consultant doesn't know what they are or what's
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Replies: 0

Last updated: 8 August 2006
Apryl on 7 August 2006

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Replies: 0

Last updated: 7 August 2006

No spleen
by Apryl (Aug 7)

I,ve just read the essential reading article, Wikipedia's CML entry and in particular the two articles on prognosis which I found a bit scary as they measure in months. One of the facters in the
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Replies: 0

Last updated: 7 August 2006
ypoulton on 7 August 2006

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Replies: 0

Last updated: 7 August 2006

Friday eve seminar meeting
by ypoulton (Aug 7)

HI Sandy

Larry and I have received comfirmation of our place at the seminar and would like to attend the fri eve get together. Haven't booked hotel yet as we have been away but will contact
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Replies: 0

Last updated: 7 August 2006
admin on 3 August 2006

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Replies: 0

Last updated: 3 August 2006

Welcome to the new forum!
by admin (Aug 3)

Hello and welcome to the new-look forum. We've tried to keep it as simple as the old one and the design isn't set in stone yet so please have a try and leave your comments and observations as
Category: Uncategorised

Replies: 0

Last updated: 3 August 2006
Paul Cooke on 4 August 2006

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Replies: 0

Last updated: 4 August 2006

GLIVEC AND CARDIOTOXICITY
by Paul Cooke (Aug 4)

Does anyone have any thoughts on the recent article which has indicated that Glivec may have been the cause of cardiac failure in some ten patients in the US?
Has anyone experienced any cardiac
Category: Uncategorised

Replies: 0

Last updated: 4 August 2006
admin on 24 July 2006

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Replies: 0

Last updated: 24 July 2006

Please read before posting!
by admin (Jul 24)

Welcome to CML Support's new discussion forum.

Please take the time to read the useage agreement below.

Posting to the forum constitutes an agreement on your part to adhere to this
Category: Uncategorised

Replies: 0

Last updated: 24 July 2006