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pyramid on 14 September 2006

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Last updated: 14 September 2006

When to switch to dasatnib ?
by pyramid (Sep 14)

I am a 37 yo male who was diagnosed with CML in late march of this year. I started Gleevec 400 mg a day in April. After 3 months my FISH test went from 98.8 % to 16.8%. My MD said this was a "
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Last updated: 14 September 2006
sandy craine on 13 September 2006

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Last updated: 13 September 2006

Jayne and Grace
by sandy craine (Sep 13)

dear jayne, congratulations on the birth of your lovely daughter grace and thanks for the photo's.

so glad all went well.

love,

sandy C ;o)
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Replies: 0

Last updated: 13 September 2006
andrew on 13 September 2006

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Last updated: 13 September 2006

PCR Result
by andrew (Sep 13)

Hi All
Just a quick email to let you know that my last PCR test came back undetectable. This was a 4 log reduction on my starting levels.
This is now the 2nd undetectable in a row for me......I'm
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Replies: 0

Last updated: 13 September 2006
CherylAnne on 12 September 2006

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Replies: 0

Last updated: 12 September 2006

Dr Giles Speaker tour - Canada
by CherylAnne (Sep 12)

Dear All,
There has been a change to Dr. Giles speaker tour, please note:
Montreal - Talk with Dr. Francis Giles - Montreal, CHANGED to October 18th, 2006

Please contact us to let us know your
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Replies: 0

Last updated: 12 September 2006
Lesley on 11 September 2006

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Replies: 0

Last updated: 11 September 2006

Revaccination after stem cell tranplant
by Lesley (Sep 11)

Hi everyone it has been a while since i have posted. Glad to say I am 11 months post stem cell transplant (sibling donor) and I am strong. My white cell count is still requiring growth factor
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Replies: 0

Last updated: 11 September 2006
Pennie on 11 September 2006

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Last updated: 11 September 2006

5 years since diagnosis
by Pennie (Sep 11)

Today is the fifth anniversary of my diagnosis. 11 sept 2001.

I must say thanks to Sandy and Elizabeth for all the help they gave me in my fight to get Gleevec. It was a long hard struggle
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Replies: 0

Last updated: 11 September 2006
KLBarker on 11 September 2006

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Replies: 0

Last updated: 11 September 2006

10 years and still No Zero
by KLBarker (Sep 11)

On Sunday it will be 10 years since I was diagnosed with CML, its an aniversary that at the start I was led to believe I would never make and I am thankful that I have. My QOL has in the main been
Category: Uncategorised

Replies: 0

Last updated: 11 September 2006
Claire on 8 September 2006

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Last updated: 8 September 2006

BMT
by Claire (Sep 8)

Hi,
My Dad is going into the Royal Free at the end of the month for a reduced dose BMT transplant after Glivec and AMN107 weren't successful. My Dad is 54 and has a non related donor but the doctors
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Replies: 0

Last updated: 8 September 2006
mariansy on 8 September 2006

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Replies: 0

Last updated: 8 September 2006

PCR Results
by mariansy (Sep 8)

Hi all
I now have my first PCR result - taken at King's at 6/7 months on Glivec. It reads 0.566%, which I know we should be pleased with. The question is how please?
ATB

Marian
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Replies: 0

Last updated: 8 September 2006
Elizabeth Rees on 8 September 2006

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Last updated: 8 September 2006

Good luck to Jayne who is having her baby tomorrow !
by Elizabeth Rees (Sep 8)

Hope all goes really well Jayne, you must be feeling rather heavy by now ! Can't wait to hear the news. Ask Aaron to let us all know.

Lots of love to you all

Elizabeth
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Replies: 0

Last updated: 8 September 2006
arrowsc on 4 September 2006

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Replies: 0

Last updated: 4 September 2006

charity donation query
by arrowsc (Sep 4)

Hello all,
I was wondering if, given the groups new charity status, we could start to make a donation via a monthly direct debit,
Craig & Alison
Category: Uncategorised

Replies: 0

Last updated: 4 September 2006
sandy craine on 3 September 2006

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Replies: 0

Last updated: 3 September 2006

promising new inhibitor XL228- thanks cheryl-anne (cmlsociety)
by sandy craine (Sep 3)

Exelixis Files IND Application for XL228

Thursday August 31, 6:00 am ET

Eighth Internally Discovered Compound to Advance Into Clinical Development
SOUTH SAN FRANCISCO, Calif., Aug. 31 /
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Replies: 0

Last updated: 3 September 2006
David on 3 September 2006

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Replies: 0

Last updated: 3 September 2006

diarrhoea
by David (Sep 3)

Diarrhoea is one of the side effects of Glivec, often not long after tyaking the pill. Does anyone who suffers from that side effect have a remedy to suggest? I have heard it said that Immodium is
Category: Uncategorised

Replies: 0

Last updated: 3 September 2006
MJS on 1 September 2006

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Replies: 0

Last updated: 1 September 2006

Gleevec Finally Kicking In...
by MJS (Sep 1)

Dear All,
After 10 months of munching Gleevec daily, I have finally started to see signs of it working in me. I was classed as a 'turtle' at 6 months for getting a PCR of only 7%. My 9 month test
Category: Uncategorised

Replies: 0

Last updated: 1 September 2006
arrowsc on 1 September 2006

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Replies: 0

Last updated: 1 September 2006

latest PCR result
by arrowsc (Sep 1)

Hello all,
Hope everyone is well, just wanted to share my latest PCR result. dx July 2005 at 36, have been on Glivec for 12 months, 100 % negative on FISH after 6 months, First PCR result from April
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Replies: 0

Last updated: 1 September 2006
kathy on 31 August 2006

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Replies: 0

Last updated: 31 August 2006

flu like symptons
by kathy (Aug 31)

Hi all,every so often i get flu like symptons,were my skin is sore to touch im freezing yet burning,even with 2 quilts and blankets i cant get warm,does any one else have this problem.I was that bad
Category: Uncategorised

Replies: 0

Last updated: 31 August 2006
sandy craine on 31 August 2006

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Replies: 0

Last updated: 31 August 2006

healthology webcast 'Balancing the Caregiver's Burden: Knowing when to Seek Support
by sandy craine (Aug 31)

to listen to webcast go to........
http://www.healthology.com/emb_player/main_embed.asp?f=cancer&c=caregivi...
Summary:

Learning that a friend or family member is seriously ill can force
Category: Uncategorised

Replies: 0

Last updated: 31 August 2006
sandy craine on 31 August 2006

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Replies: 0

Last updated: 31 August 2006

healthology webcast 'Cancer 101'
by sandy craine (Aug 31)

http://www.healthology.com/emb_player/main_embed.asp?f=cancer&c=cancer_m...
printed summary of webcast.
Summary:
Molecular targeted therapies may become a revolutionary change in the
Category: Uncategorised

Replies: 0

Last updated: 31 August 2006
kestrel on 30 August 2006

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Replies: 0

Last updated: 30 August 2006

CML in children
by kestrel (Aug 30)

Hi,

I'm new here and, like everyone in the initial stages, still trying to take in this new world.

I have a 13 year old boy who was diagnosed with CML within the last month. It was found
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Replies: 0

Last updated: 30 August 2006
Apryl on 30 August 2006

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Replies: 0

Last updated: 30 August 2006

Q. ITCHY RASH?
by Apryl (Aug 30)

I have suddenly come out in a very itchy red rash with large red spots, mostly where my clothes are tighter, under bra straps etc., but its over the trunk of my body and up my neck. Doc thinks it
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Replies: 0

Last updated: 30 August 2006