News story

Thank you everyone that contributed to the resent survey, please see some results and information below.

First of all, I wanted to say a huge thank you to all the CML patients who took the time to complete our on-line survey on generic TKIs.  We had 173 responses in total which was amazing and significantly more than we were expecting.

Our project lead Lucy Stothert (4th year pharmacy student at University of Birmingham) has done a great job of analysing all the responses and we wanted to share some of her key findings.

Details of Respondents

You can find all the presentations and videos from CML Horizons 2024 at the following link:

https://www.cmladvocates.net/cml-horizons-2024-hybrid-conference-vilnius...

DAY 1

The first day began with an essential session, CML 101, led by Dr. Van Etten and Jerry Clements. This session offered foundational knowledge and insights crucial for both newcomers and veterans in the CML advocacy community.

The evidence that vitamin D has important health benefits continued to increase in 2021. In particular, the benefits in reducing risk of SARS-CoV-2 infection and COVID-19 became more robust, as did those for CVD. The evidence clearly points to the healthy range of 25(OH)D as being 30-40 ng/ml, with additional evidence for the optimal range being 40-60 ng/ml. Due to modern lifestyles, it is very difficult to achieve those levels from solar UVB exposure and diet. The most efficient way to raise serum 25(OH)D is to supplement with vitamin D3, of at least 5000 IU/d, and up to 10,000 IU/d.

What is D*action?

D*action started out as a 5 year (now on-going) public health project to provide education and research to SOLVE the vitamin D deficiency epidemic, by measuring vitamin D serum levels, collecting health data from participants, and tracking the health effects of getting to levels of 40-60 ng/ml (100-150 nmol/L).

Published by GrassrootsHealth Nutrient Research Institute

MyeloidScan – Long COVID in patients with myeloid blood cancers

Have you had COVID 19 infection? We need to find out more about long covid affects people like you – can you help us?

We would like to share with you an opportunity to take part in a study to investigate the impact of COVID-19 infection in people with myeloid blood cancers.

What is the study for?

A really interesting paper on the management and incidence of COVID-19 in CML patients in Italy  

https://www.nature.com/articles/s41375-020-0904-z.pdf
 

As the UK and the world see many more people test positive for COVID-19 You can help collect important data with this free symptom tracker by monitoring your day to day health and wellbeing.                                                                   &nbsp