I have suffered with Insomnia for a very long time, and wondered is it me or my medication? I have had CML for over 9 years, and am at a PCR level of 0.01 in very stable MMR. I never sleep through the night, and am fatigued in the day because of this. Over recent months I have also had regular aches and pains at night in the stomach & back, and some night sweats. My mood has suffered too, but that could be life events like anyone else. I would say though, that I have always been very optimistic and not daunted by my CML, BUT in case it helps others I'm sure that I have suffered out of charachter periods of depression that I have just managed myself ( I did find it difficult to admit this in the past)
I thought I would let you all know in case anyone else is going through this, and to see what happens as I stopped taking Imatinib two days ago having discussed it and having taken the advice of Dr. Marin at the Hammersmith. I asked if I could try it for three months, but he advised against this saying that it's too long. This will be the longest period off the drug since 2004, and I am quite excited at the prospect of feeling 'normal' again. Dr. Marin warned of the dangers that some patients faced having liked being off their medication, and then continued to take unathorsied Drug free periods risking relapse. I go back next month to report what has happened, and to have my bloods checked. I would be interested to hear of others experiences.