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treatment update on Hannah and Kate32

Hi

Do you have any update on Hannah and Kate32. I was going through their old posts on increasing % and loosing of MMR. Most of the sites talks about the durability of MMR at 12 months ( including Dr Drucker ) .

Have they moved on to 2TKI ?

Regards

Thomas

Hi Thomas

I am still on the glivec, my counts are pretty low again, so it was thankfully just a bit of a blip. I am back at 0.06% or something along those lines.

How are things going for you? Are you on Glivec as well?

Kate

I am happy that you are on gleevec. Can you please share with me your counts St Dx WBC, platlet, HB, blast etc

What was your first 3 months pcr ratio? When did you achieve MMR?
Regards

Thomas

Hi Thomas

I am not sure of all of my numbers to be honest, but they are all heading in the right direction which is the main thing. When I was diagnosed in 2008 my white cell count was 165 and my platelets were really high. I reached MMR at about 16 months I think.

Where are you being treated and how are you getting on?

Kate

Hi

I am now in India. Getting treated by a good specialist. I was diagnosed on 19th Nov 2013. Currently on 400 mg Gleevic. My first 3 months Pcr Is sh showing .860 %. On IS. I am still scared.

Are you still working ? How do you manage side effects ?

Thomas

Hi Thomas. how are you?

i have noted from your previous posts that you are very anxious - at least, that is what i feel.

You were diagnosed ate a very early stage and you reach a great response till now. Maybe you are doing too much reading (like me ;)). Try to relax a little and live life.

I know it's hard. it's hard for me too. I read a lot and get anxious when i see something bad. As you said, up to 90% of us will do great and live a long life.

Be well!

Lucas

Hi Thomas

I still work but I work part time, its what works best for me. Some people still work full time, everyone gets different side effects. I find I get a bit of bone pain, fatigue and feel sick if I don't eat loads of food with my tablet. You just have to find out what suits you best.

Your numbers look good for a after 3 months, but you need to remember you are only three months in and it takes a while for you to get your head around it all. It is scary being given the diagnoses but its treatable and life does get back to normal. You just need to be kind to yourself and try not too worry to much. If you have questions post them on here as there are people with lots of experience who can help.

Kate

Thanks . I am slowly getting used to the life long uncertainty now we all need to face.

I was planning to come down to your country for football but I have cancelled the trip. I wish to come down in the near future. ..

I know it's hard. everyone here knows. I spend a lot of time reading, but i must police myself to don't get crazy!! I had some fixation with numbers, and mine weren't great - not bad at all, but i wasn't in the early early chronic phase. I just try to put in my mind that the prognostic is good and that a lot of people in not good situations do great, like my neighbour. he was in accelerated phase in 2002 and still alive and PCRU with imatinib. we have to put in mind that there's a lot of good research and soon we must have good news.

Yeah there'll be a world cup here, but i don't know if it will be great. The prices here are very high! But it's a nice and beautiful country, despite the violence, it's one of the greatests countries in the world :)