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OK - This is a tough one

So I'm a 26 year old male who just got officially diagnosed in June of this year, 2014.

4 Years ago I got hurt in an auto accident (not my fault) and have been battling an insurance company for my survival ever since. Lost everything, literally everything. Car, money, college, the woman I love, a future, my physicality, everything.... So to get DX'd around now is devastating to say the least.

Pretty ridiculous.... I suspect radon in the basement messing with a hip injury to be the culprit cause.
At any rate.... I was near homeless, starved for 5 days, then a day and a half later, 2 more days. And my white count went from 90K+ to 72K, strange.

For four months I wasn't able to treat, I had no money, no insurance, no car to get to and from, and still don't.
I got fixed up with a doctor though (I'm american, an hour outside of Chicago) and he was awful, my sister had lymphoma years ago living in the same basement.

He dropped me because I didn't have insurance. I got kicked out of the ER numerous times because I didn't have insurance and they told me that if I scheduled an appointment with these particular hema/onco guys, that they would take me the very next day and help..... of course They didn't. As I stated before I have recordings of these scumbags (ER Staff) stating that because I don't have insurance, that they won't treat me. Along with my local ER doing the exact same thing, claiming "they won't admit you because you have no insurance or money."

Anyhow, I found a way to get Gleevec, and have been taking it for about 5 days now. Before I was taking it, my white count would fluctuate from 90K to 70K and would go from 100K, down to the 60's and 70's after 3 days of taking a very low THC cannabis oil. Though because I didn't feel stoned, I couldn't tell if my ECS (endocannabinoid system) was "ON" or being stimulated, so I stopped taking the oil filled pill capsules I made. Now, after taking the pill (400mlg) once a day to the letter for roughly 5 days, my WBC-Grany is now at a 160,000....... WTF!!!!? I can't sleep, can't breathe, can't eat, feel like garbage every waking second of the day, my heart is in agony..... I have almost every bad side effect symptom aside from the most fatal and severe ones listed on this garbage.

I had really really bad palpitations, so bad that I felt like I was going to need my phone on the ready to dial 911 for a couple weeks, incase my heart failed or had a stroke. It would literally rock up through my spinal cord, and brain stem into my skull each time my heart pumped too hard.

After taking the pills for almost a week though, I've noticed the palpitations getting weaker, not so much in my skull, but still in the chest and heart area.

It doubled, how? Why? The doc prescribed that hydroxea med or w/e it's called before imatinib, I didn't take the droxy, I just waited for the gleevec, because I couldn't get a hold of cannabis oil that apparently kills leukemia cells and throws most, if not all cancers into remission after 6 months of taking the concentrate oil under your tongue, 3 times a day with adjusting doses. A rice size grain drop on your finger, put it under your tongue, and let it do it's magic.... from the most experienced users this is what I'm told to do as a first time user.

Since all leukemias are Cannabinoid receptor 1 & 2 expressive cancer genes, this is how and why THC, THCA, THCV, CBD, CBC, CBN, CBDA, CBDV among many other cannabidiol (might've spelled that wrong) are killing cancers like a boss.... or so I'm told from these places and patients.

Another side note, to those out there, You should look into decarboxylating your marijuana before you try this, it converts all of those different THC compounds into mature, psychoactive THC (the stuff that gets you stoned) and is concentrated between 70% all the way up into the 90%'s. This is why they do such a good job with the CBD compounds tag-teaming the cancer cells. They signal cancer cells to enter APOPTOSIS, and Later ANGIOGENESIS. Meaning it tells cancer cells to commit suicide and F*** off, that's how it's been working in so many people.

Google "CANNABIS OIL KILLS CANCER" if you don't want to check out the links. And don't believe a single skeptic until you try it for yourselves.

Big Pharma and the American Government has known about this for the last 19 years (or way more, probably since 1937.) And the only reason they're not as into it as the dispensaries, and commercial growers, or caregivers (all legal of course) is because you CANNOT patent a plant that naturally grows on the EARTH by law..... Any law. So what they're trying to do is develop a derivative from cannabis to patent and profit from.... but apparently their PILL forms of their cannabis extracts aren't working. Certainly nowhere near as well as the real raw thing. So that's why it's illegal, and they're trying to keep marijuana an illegal schedule 1 narcotic here in the states for exactly that reason, until they finally find a way to rip off the "cool kids" yet again, like they do everything else.

Matter of fact, look at these two before you even think about checking out the later links.

http://www.bravemykayla.com - THIS ONE

https://www.youtube.com/watch?v=lYR6jYTYFEY - THIS TWO -- TOO

Preliminary Scholastic Link : http://sorendreier.com/spain-study-confirms-cannabis-oil-cures-cancer/

Link 1 : http://phoenixtears.ca

Link 2 : http://www.sfweekly.com/sanfrancisco/miracle-cannabis-oil-may-treat-canc...

Link 3 : http://www.cureyourowncancer.org/how-cannabis-oil-works.html (WATCH THE VIDEOS/TESTIMONIALS PLEASE)

Link 4 : http://www.dailymail.co.uk/health/article-2699875/I-cured-cancer-CANNABI...

Link 5 : http://www.collective-evolution.com/2013/08/23/20-medical-studies-that-p...

Link 6 : http://scienceblog.cancerresearchuk.org/2012/07/25/cannabis-cannabinoids...

At any rate, I still could use some help from those with experience using gleevec for CML, anyone have this type of reaction?

Look forward to reading your responses.

From reading your post I am reminded that the US health system is not one that I would like to emulate and I am very glad that we have a national health system such as we have in the UK. You have had quite a rough time and I can understand your obvious frustration!- not least because you are so young to have a diagnosis of CML. I hope you can somehow resolve the issue of health insurance and therefore your treatment. I do not envy the position you are in- I understand that this is the case for many people in the US who do not have any or adequate health insurance. It is a tragedy.

You may find it helpful to contact the following US CML patient organisation who can help support and advise you. I have a lot of respect for Greg Stephens who is the founder and Director of the National CML Society. Greg's mother was diagnosed with CML so he understands the needs of CML patients in the US. They also run assistance programmes that may help you in your situation.

http://www.nationalcmlsociety.org/living-cml/newly-diagnosed
http://www.nationalcmlsociety.org/resources/assistance-programs
http://www.nationalcmlsociety.org/about-us/letter-director
http://www.nationalcmlsociety.org/what-we-do/cml-connection

Regarding your interest in medicinal marijuana for treating cancer and other diseases. I am very aware that this is a hot topic and have read a lot about it online of the last year or so. However, I think this is a personal decision to use this form of natural therapy to try to control/cure cancer as there are currently no clinical trials to study the effects and certainly not for CML.
If you decide to go down that route I really hope you find it helpful but I cannot advise you, it is your personal choice.

I can help and advise you about imatinib and as you have asked for help I will try.

As you have not been taking imatinib for very long (5 days?) and you did not take the hydroxycarbamide before starting with imatinib, it is not surprising that your white count was somewhat elevated- I would expect it to have settled at a lower number now if you have continued with the therapy.
It is usual that PH+CML in chronic phase will respond within the first 4- 8 weeks to TKI therapy and you should see a normalisation of your blood count within that time as long as you continue to take your daily 400 mg dose of imatinib.

It is difficult to advise you further as I do not understand how you can be sure of continued access to this therapy if you have no insurance- however, if you have access to a regular supply of imatinib you will need to take it consistently if you are to see any benefit. You will also need to be monitored to see how you are responding to this particular TKI therapy. Side effects for most patients are generally manageable and they do resolve over time.

I hope this is helpful for you in some way and that you manage to stabilise your situation so you can get effective control over your disease for the longer term.

Best wishes,
Sandy