My husband has been on 4-month drug holiday from Sprycel 50 mg due to shortness of breath. Because SOB has diminished but not gone away entirely, he will likely switch to 300 mg Bosulif if/when his PCR goes above .1. It is at .026. Would like to hear from others on Bosulif with advice for how best to take drug, what to avoid, etc. For example, time of day, what kind of food/water amounts, etc. And he does enjoy beer or wine with dinner. Has this been a problem?
Our hope is that on this "lower" dose of 300 there will not be severe side effects. My husband has been very responsive to TKI's since diagnosis 2012 and in MMR the whole time. A previous TFR failed after 3 months and he returned to MMR almost immediately.
I plan to also post this on the LLS community forum since I'm a bit confused about the level of activity on the two forums at this time. As always, am extremely thankful to others who share experience and advice on this journey.