Hi, my name is Ian and I haven't posted on here for a good few years as treatment has been uneventful, thank goodness!
My story in a nutshell is cml diagnosed 9 years ago at 65% with 350k white cells in spleen, biggest spleen doctors had ever seen! 2 years on Imatinib 400 lots of side effect but got down to 0.1 but numbers got stuck. Moved to sprycel 100mg and went down to 0.005 zone quite quickly and have been there for last 7 years. 2 years ago dropped to 50mg sprycel in preparation for TFR trial. Latest PCR was 0.004 :)
Well today went to Kings and discussed TFR and will be starting in November with monthly PCRs and 3 monthly check ups, with first 6-9 months being critical to holding response.
Wish me luck and hope the immune system can take over, will keep you posted on this thread. Will answer any questions anyone may have also about any part of my journey so far...
BTW This link is a pretty awesome introduction to TFR: http://mypcr.org/wp-content/uploads/2018/09/MyPCR_TFR_FAQ.pdf