Hi all
its been a while since i looked for some advice so here goes...
Im coming up for 4 years since diagnosis.
After 2 years on Imatinib I went resistant, I should have been changed to another drug way before as my bcr/able had never gone below 1.
however I was put on Dasatinib 100mg about 18 months ago (June 2018) my count went down below 1 but has not really gone much further since.
my readings are...
Aug 2018 - 0.825
Nov 2018 - 0.340
these two readings were on some other scale which has now been given to me on the international scale as follows...
Feb 2019 - 0.081
May 2019 - 0.211
Aug 2019 - 0.184
Nov 2019 - 0.179
my counts seem to be staying in this range and the Doctor has said its ok but if it goes up they will look at changing me to posatinib possibly ?
My question is … is there anyone on here who has been living long term with their count just below 1 quiet comfortably ?
I will add I feel OK and am reasonably fit and don't seem to be getting any side effects.
thanks
Paul