Dear all . I have never posted on this sight to date but have been following for some 5 years now. Diagnosed 2/2015. I am on Imatinib with MMR at six months . My PCR is 0.018 - all bloods stable. The only “ blip “ is my testosterone level which is low - I am apparently right at the bottom of the normal range. My clinic is at Hammersmith hospital - I have discussed this issue with 3 different consultants in the clinic including professor Jane Appleby. They all agree that going onto TRT therapy with CML is not a problem.
My GP agrees that I present with all the symptoms of low testosterone - low mood, no sex drive, weight gain. no stamina ! That said it’s easy for me to put this down to age - I am 60 - also putting it down to the cml. However the T level bloods tests have been constantly low over the last 12 months
HELP - I am at a loss with it all - on the one hand I could start TRT therapy - on the other hand like all drugs their are possible side effects - are their any men on this forum that have come a cross this ? Of course I have looked up loads of stuff online - and their have been documented cases of men being on imatinib and then get low T levels - but to be fair their is no definitive research in this area.
Any experience - suggestions - or advice would be most welcome
thank you
philip