I was originally taking nilotinib (800mg daily) at 6am and 6pm which worked well except I was losing a bit of sleep from having to wake up early. I recently changed the timings to 11.30am/pm, which works better with my schedule. However, because I tend to have a big evening meal at around 8pm, it means that my stomach is still quite full by 11.30pm. Even though I’ve observed the two hour rule, I feel quite full at that point. I’ve been waking in the night feeling hot and thirsty and am aware that I’ve taken the drugs whereas with my previous routine, I simply didn’t notice it.
I’ve decided to switch back to 6am/6pm but am concerned about changing my hours for the second time within a week, and wanted to ask if anyone else had experienced the “druggy/thirsty/hot” symptoms that I’ve been experiencing? The instructions are “at least” 2 hours before food and I feel as though after my evening meal, I need to leave it longer.
Also, does anyone know if CML patients in the UK will be within the first batch of people to get the vaccine here? I’m 49 and based on the guidance so far, I don’t think I will qualify until over 65 year olds have had it. But this seems rather unfair given the “extreme clinically vulnerable” status that we have.