Hi all,
I just found out my latest bcr-abl results and I’m really disappointed to say the least.
Did any of you experience (somewhat) the same journey...and will it be all right in the end? I’m kind of freaking out now. I mean it’s descending but reaaally slow right (too slow??)
Fortunately for my sanity I see my hematologist tomorrow, but I was just wondering if some of you have any advice on what should be done next or experience that you want to share?
My timeline:
21-07-20 Dx (bcr-abl unknown/ not measured)
23-07-20 Start Imatinib 400 mg
26-10-20 72.9% bcr-abl IS
16-11-20 68%
02-12-20 Switch to Dasatinib 100 mg (no mutations, Sanger sequencing)
22-12-20 29.4%
04-01-21 23.8%
18-01-21 15%
24-02-21 11%
(Just one sidenote: NGS for mutation testing is not available here in the Netherlands and I’m already treated now by one of the best CML experts in the country).
Hope someone has some advice on this...thank you,
Marilyn