I am pleased to report my PCR came back "undetected" after a full year in "treatment free remission" (TFR)
I am pleased my protocol leading up to TFR seems to be working. I'll celebrate after Lent is over.
In recap, I started out near blast crisis, 8% blasts, poor response to imatinib leading to severe myelosuppression with a crashing blood system - up and down for nine months before stabilizing (down). After doing a lot of research on the genetics of CML - decided to apply nutrition to every genetic pathway which favors bcr-abl destruction and immune enhancement as well as managing restoration of my blood system and changing doctors to a research center specializing in CML. I was diagnosed May 2010.
I will never feel I have beaten CML - only that I can live drug free a year at a time.