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Apryl on 10 October 2006

Category: Uncategorised

Replies: 1

Last updated: 6 November 2006

Travel insurance
by david.pillow (Nov 6)

Try snowcard insurance www.snowcard.co.uk It's meant to be aimed at trekkers, climber skiers etc, but there was no loading for CML

David Pillow

by Apryl (Oct 10)

I am probably not looking in the right place but there used to be a link to a travel insurance company that would give a reasonable rate for CMLrs. Cant find it on this new site. Can anyone direct
Category: Uncategorised

Replies: 1

Last updated: 6 November 2006
David on 30 December 2006

Category: Uncategorised

Replies: 3

Last updated: 1 January 2007

Travel Insurance
by Coyney (Jan 1)

Thanks again David,
I'm planning 2, week snowboard holidays to Canada and the USA so don't really want to risk going without adequate cover in case I hit a tree or something! So 17 days will be just

by David (Dec 31)

Martyn - yes, on the multi-trip annual policy, it includes ski cover for up to 17 days in the year but do check that if you contact Age Concern. Good luck and enjoy the holidays you are planning.

by Coyney (Dec 31)

Thanks for that David,
I've been away a couple of times and have just opted for standard insurance with out declaring my CML. So I'll call age concern to get an annual quote as I'm planing several

by David (Dec 30)

I had that sinking feeling when a letter arrived this morning offering to renew our annual travel insurance, subject to repeat medical screening for Val. However, I need not have got anxious because
Category: Uncategorised

Replies: 3

Last updated: 1 January 2007
claire hall on 5 October 2006

Category: Uncategorised

Replies: 3

Last updated: 25 August 2008

Pregnancy (I hope)
by Martha Stuart-Berrisford (Aug 25)

Hi, I am 30 and was diagnossed with CML in November last year. At the time we were hoping to try for another baby but my specialist said it would be too risky. After months of trying to push this

by KennyD (Mar 29)

Hi Clare
You may find this website of interest:
http://www.glamour.com/lifestyle/blogs/editor/2007/03/index.html
Good luck
Kenny

by Denise (Mar 28)

Hi Clare did anyone get back to you with any info? I am having the same problem obtaining any info on taking a brake from Gleevec in order to try for a baby. I was diagnosed 19 months ago while 12

by claire hall (Oct 5)

Hi
I am new to this support group and was hoping to gain as much information as possible regarding pregnancy and cml.
I am 25 and was diagnosed in March 2004. My PCR result is very good at the
Category: Uncategorised

Replies: 3

Last updated: 25 August 2008
Anna on 18 September 2006

Category: Uncategorised

Replies: 5

Last updated: 6 July 2007

muscle pain
by Cynthia P (Jul 6)

Dear Yvonne,

Thanks for your reply, looks like we were both diagnosed at the same time!

Try the Epsom salts, as I mentioned to Susan, Yes, seems Cramps, eye bleeds, muscle pain all

by Cynthia P (Jul 6)

thank you so much Susan for your input, it helps that one is not alone in having the same reactions. we must keep an overview I suppose on the fact that we are really doing so well, these things

by skiinglaketahoe (Jul 2)

Hi Cynthia
Just to say that I have been on glivec and BMS and had terrible pains in my feet. It started slowly on the glivec and the pain was in the soles of my feet and only really painful when I

by ypoulton (Jun 29)

My muscles ache and also am getting bone pain but as you say everything else is good so try not to moan too much. I have been on glivec since 2002 the tiredness comes and goes but I have found out
Category: Uncategorised

Replies: 5

Last updated: 6 July 2007
Penny on 29 August 2006

Category: Uncategorised

Replies: 1

Last updated: 14 June 2007

eye bleeds
by Moira (Jun 14)

Hi
My husband was diagnosed in Sept 06 and was on 400mg of Gleevec until last week when they increased it to 600mg and as of yesterday, 800mg. Today he had his first eye bleed, glad to read of

by Penny (Aug 29)

Yesterday I read comments from some people about having eye bleeds. - subconjunctival heamorrhages - I have had many of these since being diagnosed almost two years ago. I take Glivec and have had a
Category: Uncategorised

Replies: 1

Last updated: 14 June 2007
jjhollis100 on 8 August 2006

Category: Uncategorised

Replies: 8

Last updated: 20 February 2007

I'm new here....
by KennyD (Feb 20)

I agree - take it easy - that's what I've been doing. I have a few beers now and then.
All going smoothly to date - no major probs.
Thanks! Kenny

by KennyD (Feb 20)

Hey Jason - sorry for leaving it so long to reply, and thanks for responding. The reason for the Glasgow question is that, being from Glasgow (but living in NZ), I did a search on 'glasgow' using

by philcowtan (Jan 15)

Kenny,
Similar experience but years ago but when on Glivec, side effects were there but nothing that was unbearable. Main thing in my opinion is not to push things too far - I manage to some good

by philcowtan (Jan 15)

Kenny,
Similar experience but years ago but when on Glivec, side effects were there but nothing that was unbearable. Main thing in my opinion is not to push things too far - I manage to some good
Category: Uncategorised

Replies: 8

Last updated: 20 February 2007
Des on 7 August 2006

Category: Uncategorised

Replies: 1

Last updated: 5 November 2011

List of Blood Test Values
by Vangogh (Nov 5)

Hi Des
I keep a spead sheet of all my results, it is good to go back over the results from dx (2008) The values I use are as follows.
White Blood Cells 4.00 - 11.00
Platelets 150 - 450

by Des (Aug 7)

I remember on the other site that somewhere there was a list of the ranges of normal values of the Full Blood Tets that we all have taken. I found this invaluable to check my own list after a
Category: Uncategorised

Replies: 1

Last updated: 5 November 2011
judithomas on 4 August 2006

Category: Uncategorised

Replies: 1

Last updated: 12 April 2007

leukaemia in spinal fluid
by judithomas (Apr 12)

Sorry - I first have to apologise for not being a regular visitor/contributor to this website. For those that know of us, Paul now has the leukaemia yet again in the spinal fluid and is receiving

by judithomas (Aug 4)

Hi there, long time no communication, Paul has had a good period of remission. Now things have changed and he is on maintenance chemo (HHT), but cml has gone to spinal fluid. Can anyone tell me
Category: Uncategorised

Replies: 1

Last updated: 12 April 2007
Bmckenna on 18 September 2015

Category: Side effects

Replies: 0

Last updated: 18 September 2015

Tylenol recommended for severe sprycel side effects?
by Bmckenna (Sep 18)

Hello all! I had a dr visit today and I'm very excited to say that my wbc is 4.4 ( down from 59.5), my platelets are 187. I'm very thankful for these TKIs! Having said that I just completed
Category: Side effects

Replies: 0

Last updated: 18 September 2015
sandy craine on 17 September 2015

Category: Uncategorised

Replies: 0

Last updated: 17 September 2015

2015 CML Patient and Carer Seminar- London November 14th
by sandy craine (Sep 17)

CMLSg has been asked to share the following message: We now accepting registrations for the CML Patient's Day on Saturday 14th November 2015, W12 Conference Centre, Hammersmith Hospital. The
Category: Uncategorised

Replies: 0

Last updated: 17 September 2015
sandy craine on 9 September 2015

Category: Drug-food interactions

Replies: 0

Last updated: 23 January 2016

Drug and Food interactions with TKI therapies
by sandy craine (Sep 9)

Amina Haouala, Nicolas Widmer, Michel A. Duchosal, Michael Montemurro, Thierry Buclin,and Laurent A. Decosterd
Abstract Several cancer treatments are shifting from traditional, time-limited,
Category: Drug-food interactions

Replies: 0

Last updated: 23 January 2016
sandy craine on 9 September 2015

Category: Uncategorised

Replies: 0

Last updated: 9 September 2015

World CML Day 22/09
by sandy craine (Sep 9)

As some of you will be aware an idea that we should 'celebrate' World CML Day on 22nd day of the 9th month was started in 2008 by the CML Society of Canada in order to raise the profile of
Category: Uncategorised

Replies: 0

Last updated: 9 September 2015
sandy craine on 5 September 2015

Category: Uncategorised

Replies: 0

Last updated: 5 September 2015

CDF delist- Bosutinib
by sandy craine (Sep 5)

Access to bosutinib for CML patients in England
Many of you are aware that NHS England has been reviewing some of the drugs that are routinely accessible only by a patient’s clinician making
Category: Uncategorised

Replies: 0

Last updated: 5 September 2015
sandy craine on 10 August 2015

Category: Treating CML

Replies: 0

Last updated: 10 August 2015

OPTIC- first patient treated in Ariad's Phase 2 dose ranging study of iclusig for CML
by sandy craine (Aug 10)

The first patient has been dosed in a Phase 2 clinical trial, called OPTIC, evaluating three doses of ARIAD Pharmaceuticals' Iclusig (ponatinib) in patients with refractory, chronic-phase
Category: Treating CML

Replies: 0

Last updated: 10 August 2015
Gst on 3 August 2015

Category: Reproductive health

Replies: 0

Last updated: 3 August 2015

Fathering a child whilst on Bostunib
by Gst (Aug 3)

Hi,
Has anyone fathered a child whilst on Bostunib? I can't fine any stories on the internet. We are already blessed with a lovely boy and he was conceived whilst I was on Imatinib. I'm currently on
Category: Reproductive health

Replies: 0

Last updated: 3 August 2015
sandy craine on 29 July 2015

Category: Uncategorised

Replies: 0

Last updated: 29 July 2015

Future Access to ponatinib and bosutinib for patients resident in England
by sandy craine (Jul 29)

We are publishing letters sent to Jeremy Hunt, Minister of Health, and Simon Stevens, CEO NHS England, signed by ourselves and Leukaemia & Lymphoma Research, Leukaemia Care, CML UK Facebook
Category: Uncategorised

Replies: 0

Last updated: 29 July 2015
YoungWithCML on 13 July 2015

Category: Getting help

Replies: 0

Last updated: 13 July 2015

IMPORTANT ; Please Help!
by YoungWithCML (Jul 13)

I really didn't want to have to post this like this, I'm not sure if I'm violating any rules of the forums, but I've just signed up over at "JustGiving For Causes" as well
Category: Getting help

Replies: 0

Last updated: 13 July 2015
Steven Davies on 22 June 2015

Category: Getting help

Replies: 0

Last updated: 22 June 2015

The Annual Patient Carers Patient
by Steven Davies (Jun 22)

This years annual Patient and Carers Seminal will be Saturday 14th November 2015 at the W12 Conference Centre at the Hammersmith Hospital. So please make a note in your Diary.. More details and a
Category: Getting help

Replies: 0

Last updated: 22 June 2015
cousineg on 4 June 2015

Category: About CML

Replies: 0

Last updated: 4 June 2015

New abstracts at ASCO 2015
by cousineg (Jun 4)

See "New abstracts at ASCO 2015"
Category: About CML

Replies: 0

Last updated: 4 June 2015
sandy craine on 11 May 2015

Category: Uncategorised

Replies: 0

Last updated: 11 May 2015

Encouraging story about having CML and motherhood.
by sandy craine (May 11)

Journalist and blogger Erin Zammett Ruddy wasn’t supposed to be a mother. Diagnosed with chronic myelogenous leukemia (CML) in 2001, she attributed a quick remission to a medication that says right
Category: Uncategorised

Replies: 0

Last updated: 11 May 2015