Dear Sandy, Yes your information is valuable to me and makes me feel stronger already. My PCR's are still low but they are slowly changing upwards. They have been at 0.000 since 2005 when I began on the 600mg Glivec. There has been one blip two years ago but eventually low figures came back for a short period but again for the last year the figures are coming back around 0.009 and the last report this month was 0.015. I cannot escape the fact that the figures are gradually increasing. I have read on the home page that switching to Nilotinib improves molecular response in Imatinib treated patients with detectable BCR-Able after complete cytogentic response. (American Society of Haematology 12/18/2012). Also Brian Drucker recently said that Ponatinib is - "What they have been waiting for". I am very excited by the way research is still progressing.
Currently I am fairly well again, but recently have had Polymyalgia (on steroids) and more recently Pernicious Anaemia - am now on B.12 injections every 3 months and they have me jumping around again like a kangaroo. I have just been told my haemaglobin is too low.
I don't know too much about the drugs you mention so perhaps you could please give me any suggestions in case I can eventualy get a change over. I have made up my mind to keep up with the site again and to also go to the next annual conference. With best wishes to everyone who may read this and love to you. Pat
