My name is Jon and from Virginia. I am a Naval Aviator and a father of 2 with a badass wife!
Recently diagnosed with CML at the age of 32. No symptoms what so ever. Went in for routine blood work early November, WBC was at 23. Doctor had me do more blood work 10 days later. It was at 27. At that point he ordered a battery of blood work to start ruling things out. Thats when I found out I had CML. ONC said it was caught it early and in the "chronic phase". He had me on 100mg Sprycel 2 days later and now on day 4 of medication. No side effects so far, and still carrying on with normal life. Initially scared to death but the more I learn, I thank God every day I was diagnosed with the "best" worst blood cancer to get. My next appt. is late Dec, and ONC expects to see positive results. I'm very grateful for a community like this. I have been trolling every day since I found out. I have so many questions and look forward to learning more about best practices to manage CML and live a long healthy lifestyle. Please see below for my initial questions. Thanks in advance!
- What questions should I be asking the ONC?
- Is WBC at 27 high?
- Best Hospital of East Coast for CML? Looking to get a second opinion.
- I read conflicting info on what extra vitamins I should be taking. Any info would be great.
- What not to eat?
- This was on my blood work. Can anyone interpret the percentages?
e13a2 (b2a2) transcript Comment % 01 352.6411 ----- e14a2 (b3a2) transcript COMMENT % 01 <0.0032 % (sensitivity limit of
assay) ----- e1a2 transcript 0.1537 % 01 Interpretation: COMMENT 01
POSITIVE for the BCR-ABL1 e13a2 (b2a2, p210) and e1a2 (p190) fusion transcripts.
- How long can I wait to expect side effects from Sprycel?
Thats all for now! Thanks!